Mia v hypertrophic cardiomyopathy
£135 raised
0% of £40k goal
13 contributors
3 Years running
Hi For all of you that know us you will already know our story but for those of you that don't I will begin We are Wayne and Louise grant,we have been together for 20 years and have had 7 wonderful children in our time together. In May of 2007 ...

Hi For all of you that know us you will already know our story but for those of you that don't I will begin We are Wayne and Louise grant,we have been together for 20 years and have had 7 wonderful children in our time together. In May of 2007 our daughter Dannielle was on her way home from school when she suddenly died on the spot, luckily for us there were 2 very wonderful ladies that helped our daughter until paramedics arrived who then shocked her back to life, she was admitted at Southampton general hospital and was diagnosed with hypertrophic cardiomyopathy with severe arhrythmias..although Southampton had been very good and she was in top hands with a very experienced team of cardiologist she sadly lost her battle to this disease in March 2008 at the age of 9. Our world had been shattered and our lives nearly destroyed but for the sake of having our 2 boys and a baby girl plus being pregnant with twins our lives had to go on....our children had been tested for any signs of what Dannielle had and fortunately everything was fine with them, in June 2008 less than three months after Dannielle's passing I gave birth to a boy and girl. Mia was born with a cleft palate and was also diagnosed with shortening of the upper and lower limbs, a year after there birth they had to have tests to determine if they had the heart condition..troy was absolutely fine but Mia was diagnosed with having hypertrophic cardiomyopathy again we were devastated and couldn't understand why this was happening to us. Mia was admitted to Southampton General for a night so they could start her on medication straight away, she has been on a beta blocker now for 4 years and still attends Southampton hospital for regular ECG's and echo cardiac scans everything has been going well and in between all her trips to Southampton she also attended the john Radcliffe hospital in Oxford to have her cleft palate repair which went well. In November we had to take Mia back to the general to be admitted for a MRI to determine how much this heart condition had progressed everything went well and she was discharged later that night we were given another appointment for 3 weeks after the MRI for her to go back and have her routine check up and that's when we were given the devastating news...her cardiologist told us that the results of the MRI have shown that Mia's condition has progressed a lot and unfortunately 3 years from now we are going to be back in the same position we were in with Dannielle. Mia is only 5 at the moment so they are suggesting she is only going to be 8 the same as our danni. I'm not quite sure that the news of our daughter losing her life in 3 years from now has quite sunk In and I really don't know how you are suppose to cope with hearing such news, but what we have promised ourselves is that our baby girl will have the best 3 years she can possibly have and we will go to any lengths to make this happen...we have set up this page for people to be kind enough to donate money to our daughter if you so wish to or hold charity events in aid of her, everything that gets donated to Mia will all go into helping her have the best she can for the next 3 years  Please have a heart and help us to help Mia it will give you a sense of fulfilment to know that your money has helped a very greatful family at such a difficult time..plus our goal is to raise £40.000 this will also contribute others that are in our situation and go towards research for the hospital to hopefully get a better understanding of what this condition is and how to treat it to hopefully prevent others from going through what we have  thankyou x

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£10
T-shirt
  • 1 claimed
The t-shirt will have the description
Mia v hypertrophic cardiomyopathy printed on it with the photo below
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