Thanks for Contributing to Kate's Perfect Recovery
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$8,300 Raised
114% of $7.3k goal
40 contributors
2 Years running
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After Kate's surgery (decompressive suboccipital craniectomy & cervical laminectomy for advanced CM-I.5, i.e., protrusion of the entire cervicomedullary junction below the skull), she will continue to contend with Klippel-Feil. Your generosity will help! More ...

Please Help Kate Get the Therapies She Needs for Klippel-Feil with Chiari Malformation

In 2002, a call out of the blue announced a baby for adoption: "Are you interested--" I was asked; I interrupted, "Absolutely!" I'm flooded with gratitude every day. Kate's my heart--her compassionate, insightful, humorous nature delight everyone she meets. But life hasn't been easy for her, and she needs therapies that will bring her comfort following an upcoming surgery into her brainstem.

A Child with Multiple Neurological and Autoimmune Challenges

Since her birth, doctors seemed wary of my worrisome nature and protectiveness. When my daughter was born with a pilonidal cyst, her pediatrician didn't tell me to watch for a tethered spinal cord, scoliosis, or chiari malformation of the brain stem. No images were taken to identify her fused cervical spine or craniocervical junction. Nor did jaundice Coombs positive results induce a warning to watch for autoimmune issues like Kawasaki's disease and lyphoproliferative disorders. Kate has survived all of this with remarkable strength, but not without a great deal of pain and emotional reaction to the outward signs of surgery and spinal compaction.

Kate's Recovery from Past and Upcoming Spinal Surgery

When her spine was untethered a few years ago, she astounded doctors with her optimism and quiet strength. I believe she will show the same resilience for decompression of the brainstem, but this time I want her to get the therapies she needs to optimize neck mobility; to bring comfort to her neck, back, and limbs; and to find joy and confidence in taking classes in some of the things she loves to do--dance; play viola, piano, and the recorder; sing; draw and make crafts. She'll also need tutoring for recovery and for some of the consequences of Chiari.

Our Currently Dismal Financial Situation

The fact is, we can't afford it. My girls and I have hidden in five DV shelters to avoid a dangerous situation that seemed to follow our every move. She has attended five schools and she's in fifth grade. When we left, we lost everything I'd worked for as a professional writer-editor for 14 years--a nice house, car, furniture, a way of life. I'm working hard to recover financially for my girls, but have epilepsy, concurrent sleeping disorders, and autoimmune vasculitis resulting from Grave's disease, so we're not there yet.

Help Kate Strive for the Achievement She Wants, Not Just for Mobility and Pain Tolerance

I must get my loving daughter through this hurdle. Ask Kate what she wants to be when she grows up: the President, so she can eliminate war and protect the poor. And if that fails, a singer/songwriter/performer or an obstetrician so she can catch babies. She will achieve great things. With less chronic pain and more mobility, she can achieve great things with pleasure. She can fight the good fight rather than her own pain.

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Perks

$2
All-Occasion Cards, $2 each
  • 15 claimed
Cards feature Kate's artwork on the outside and a plain inside so you can give them for birthdays, thank-you notes, etc.
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$15
Creative Writing Workshop, Per Class
  • 0 claimed
Gift your curiosity with creativity. Attend one session (per contribution) of an edgy creative-writing workshop led by a university fiction teacher and award-winning published author/poet.
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$30
Shirt Featuring Kate's Artwork
  • 1 claimed
We'll have a T-shirt made to size, giving you up to four choices of Kate's fun, colorful artwork to be silkscreened on it.
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$85
Housecleaning
  • 0 claimed
Two women x two hours housecleaning anywhere in the Salt Lake or Ogden valleys. Will dress as clowns or lamas if really, really necessary.
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$160
Professional Resume and Cover Letter
  • 0 claimed
If I'm good at one thing, I'm good at making other people sound great on paper. I'll make your contribution worthwhile.
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$500
Manuscript Copy-Edit
  • 0 claimed
Award-winning novelist and editor with 9 years book-editing experience to copy-edit ms of < 350 ds 12-pt pages of poetry or prose.
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