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Our daughter needs extensive cleft palate repair!
$1,410 raised
9% of $15k goal
14 contributors
4 Years running
Our daughter Izabella was born with a horrific birth injury which resulted in a rare lung disease called PPHD (pulmonary hypertension of the lungs). She was intubated for a month, and during extabation they discovered that she has a bilateral cleft ...
Our daughter Izabella was born with a horrific birth injury which resulted in a rare lung disease called PPHD (pulmonary hypertension of the lungs). She was intubated for a month, and during extabation they discovered that she has a bilateral cleft palate that would require multiple surgery's to repair. Because of that she had to have a gtube placed in her stomach for feeding purposes. We later found out that she has Pierre Robins Syndrome. It explains why she has a cleft palate and a thick tongue. She was choking on her tongue and losing oxegen. We are thankful that we noticed it in time to save her life. Because of all of her problems she was sent home with a apnea monitor, a pulse oximeter and her gtube machine that she is hooked up to every day. Our medical bills are now over 100,000 and our insurance doesn't cover even half of her care. We spent all of our savings driving 2 hours to D.C and 2 hours back plus parking every day for 2 long months! The doctor's recommended that she should have an at home nursing care for her for the first year. Unfortunately our insurance will not cover it and we are just taking it day by day. She is due to have her first cleft surgery by September and we are praying for a financial miracle. I cannot return to work due to her much needed care and her father has been working double shifts and on weekends to make ends meet. Her father and I are putting all of our faith on the Lord. We have already been blessed to have our daughter survive, and now we are standing in faith to raise money for her multiple surgeries and medical expenses.
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