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Lorelai is a sweet, loving, funny three year old girl. She loves her family and lights up the room whenever she enters. She loves Minnie Mouse and Sophia the First. Unfortunately she was born with Juvenille Myelomonocytic Leukemia, Noonan's syndrome, and monosomy 7. JMML is a rare form of Leukemia that does not react to chemotherapy or radiation. The only option is having a bone marrow transplant, which can be done using stem cells. They say that a sibling is the best match so they are banking her sibling's cord blood just in case they need it in the future. They have found that Noonan's syndrome can sometimes repair the JMML cells but Lorelai is the only person recorded to have all three conditions.
Lorelai's mom, Jen, is due to have a baby in the next few weeks. When asked if she would like to have a baby shower, she conveyed how important it was for the family to bank the new baby's blood and that was all she wanted. In order to be able to use their own child's donation in the future, they have to bank it privately and this can be quite the financial burden in addition to all the other expenses that come with having a new baby.
Please join us in welcoming Baby Diaz (soon) and help give his or her family this opportunity. On behalf of Jen and Luis Diaz whatever you can spare for this cause is greatly appreciated and means more than you can know. If you have any additional questions about Lorelai's condition and treatment feel free to ask Jen and Luis!
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