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I was diagnosed with diffuse systemic sclerosis or scleroderma just over a year and a half ago. It's been a long year adjusting to this new way of life and the symptoms just seem to be getting worse before they get better. I've lost a lot of weight, (30 pounds) and most of the function in both of my hands. The illness has affected my digestive system and we are learning about that right now. Lately, most days I just stay in bed because of the pain and severe fatigue. Not to mention the pain meds they have me on... I have created a facebook page to give me an outlet and a way to let people know how I feel on a day-to-day basis. It's called "My Life with Scleroderma." My husband is working 2 jobs to try to support us, but it is never enough. I have never really shared details of my illness to anyone like this before except with my husband and immediate family. But I feel that this is important to share with everyone else and this is a good way for others to communicate with me.
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