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Hi Everyone,
Joshua Joseph Ladouceur was born on August 16, 2013 with a medical problem called Craniosynostosis. He has to have surgery in January of 2014 to correct this problem with his skull. I am going to share his mom's post to FB telling all about his condition.
Ok, I'm a little more calm and collected now. I guess what makes this hard is that I walked into my appointment completely believing that he was going to be handed a helmet and we would be off. Not the case however. Here is the problem and the surgery it will take to correct. Sagittal synostosis is the premature closing of the sagittal suture in infants. The sagittal suture is the soft spot on the top of a baby’s head, between the left and right sides of the skull. When this part closes, growth of the baby’s head from the sides is made impossible. The head can only grow from front to back, which results in a narrow, elongated head that grows into an oblong shape. Sagittal synostosis is a very rare condition, and it affects about one in 6,000 infants. Sagittal synostosis surgery can be performed to correct the condition, during which a strip of bone is taken off the top of the skull, leaving room for the bone to grow in properly. Sagittal synostosis repair can also involve reshaping the skull, in which the forehead is tilted back and the skull’s dimension shortened. The bones are then secured with wires, while gaps between the bones purposely remain free to avoid growth restriction. The Neurologist said that after his surgery he will have to wear a helmet for a little over a year. I guess it was a little overwhelming. The pediatric plastic surgeon scared the stink out of me by rushing through everything, all I heard was his mentioning of a blood transfusion, cutting off part of his skull and possible risk of death. Even at the lowest percentage those are words a mom never wants to hear. After meeting with the first doctor and waiting to meet the second, I sat down and waited. Everybody in the waiting room could tell from my eyes that I had received some bad news. Then through the blurriness I noticed next to me a little girl who was quadrapalegic. Once again a subtle reminder from God that things could be worse. While it's killing me that my small sweet boy will have to go through so much, I'm thankful that we have one of the greatest (if not the greatest) children's hospital in the country, and that God's timing of my parents moving in may have been divine appointment. God is good. Thanks for the prayers and thoughts. For those who have texted and called, I'm sorry I haven't gotten back to you yet. It's just been an emotional day and I'm a little drained.
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