Its Magic (Mias Bucket List)
£536 raised
11% of £5k goal
9 contributors
2 Years running
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We are Fundraising for  “Its Magic Mia’s Bucket List” “Mia has an undiagnosed neurodegenerative disease which is life threatening. Last Autumn she was rushed into hospital with fits and that’s when life changed forever for Mia and us. Mia has ... More ...

We are Fundraising for  “Its Magic Mia’s Bucket List”

“Mia has an undiagnosed neurodegenerative disease which is life threatening. Last Autumn she was rushed into hospital with fits and that’s when life changed forever for Mia and us. Mia has gone from a healthy 5 year old to a 6 year old with vision impairment and facial palsy along with poor coordination unable to walk far, fine motor skills are deteriorating, basically she is going backwards in her development. She has had MRI scans that are showing clouding on the brainstems (bulbar palsy) which are making signals from the brain to the body confused and unstable.  We take every day as it comes as we are unsure of what the future holds but know the condition is incurable and ongoing with many hospital visits and tests.

We decided (as advised by one consultant) to enjoy life as fully now whilst she’s able to and have put together a bucket list for Mia of everything she would enjoy to keep that smile on her face as long as possible.

I hope with family and friends to fundraise as much as possible to accomplish this for not only my daughter but a very brave girl who still manages to put a smile on people’s faces with everything she’s going through…..”

                                                                   Sarah Parnell- Mia’s Mum

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