Your share could raise £30
Before you go, did you know that simply by sharing this campaign, you could help it raise £30? It's an effective way to support the cause.
No thanks- Pin it
- SubscribeUnsubscribe
- Embed
Charley Louise Kinz hasn't added a story.
For those who didn't already know, I was diagnosed with severe aplastic anaemia in 2009. Aplastic anemia is a rare but serious and potentially life threatening disorder.
Only 2 in a million people get the disease every year. It can develop suddenly or slowly and often takes a while to detect. The disorder tends to get worse over time, unless its cause is found and treated. Treatments for aplastic anemia include blood transfusions, blood and marrow stem cell transplants, and medicines.
I was treated in bristol haematology and oncology center and was given a 5 year remission period, in which I was told if I got through those 5 years, chances of it coming back were unlikely! The first year was not easy with frequent daily visits for 4-8 hour transfusions and being held in isolation rooms aswell as being housebound. Luckily I never had a bone marrow transplant, which is life threatening itself and 5 years later I'm still alive and kickin'!! To celebrate the end of my remission I am doing a skydive, to raise money for the aplastic anaemia trust and general awareness for the disease. I bet you've never even heard of it! ;)
'Thanks in large part to the work of the Trust, guidelines for AA care have improved throughout the UK and the disease is now well recognised by the haematology community. Additionally, the prognoses of those patients with the disease are no longer so bleak; 25 years ago, no more than 3 in 10 AA patients survived for a year, but today as many as 8 in 10 will be restored to a good quality of life'
So please sponsor/donate anything you can, I really appreciate it! This means a lot to me as I've gone through it myself and just want to give something back to the people who saved my life. Thank you!!
Highlights
See all activity5Activity
Delete media item?
Delete this item from the media gallery? It will also be deleted from any related story update.
Set as ?
The campaign video will appear in social media and email.
The campaign cover picture will appear in social media and email.
The will appear at the top of your campaign page and in social media and email.
Reset ?
It will be removed from the top of your campaign and won't be used as default in social media and email. The will remain in the media gallery.
Embed
Share a link
Delete update
Delete this story update?
Any pictures or videos will remain in the campaign's media gallery.
Report campaign
Report submitted
Thank you. We take reports like yours very seriously. Our goal is to keep the community safe.
Please know that we may contact you for more information, but that we won't notify you personally of our decision. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Thank you. We've already received your previous report. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Tell us about the problem. Please fill in both fields below.
Record a video
Upload a video
Nothing grabs attention for your cause like a personal video. Take a minute or two to record one now. Record a short video message of support. Or upload one from your device. You can preview or redo your video before you post it.
Nothing grabs attention for your cause like a personal video. Upload a short video message of support. Upload a short video message of support. Or record one right now.
- Most effective video length: about a minute.
- Maximum length: 5 min.
- You can preview or redo your video before you post it.
Heads up! The existing video will be replaced.
Email your friends
Join our team
Tell people why our cause matters to you. Your personal message will encourage others to help. Easy, effective, optional.
Say it in video
Short personal videos by supporters like you are incredibly powerful. Record one right now and you'll help us raise more money. Easy, optional, effective.
Add a personal goal
Set a personal fundraising goal. You'll encourage more contributions if you do. And rest easy. There's no obligation to achieve your goal or bad consequences if you don't. Easy, optional, effective.
We have a video!
Video thumbnail
We'd love to show you our campaign video. Want to take a look?
, you're already on the team.