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Hi everyone,
My name is Cohen Smith. I was born into this world with more than enough health problems. So many in fact, that I can't keep up with all my conditions. One thing after the next. Most of my life I've been in and out of the hospital. Searching for the answers to my problems. The doctors are not able to give me a diagnosis or prognosis. I sit and wonder how my life will turn out. Right now, they are managing my seizures, with Keppra. They say, I have epilepsy. My brain MRI shows atrophy, which means it's "shrinking." Why the heck would that happen?
My mom and Aunt Safa spend lots of time with me at the hospital. They are here, around the clock, watching over me. During the day, mommy holds me and sings a special song, she made just for me. At night, Aunt Safa and l listen to music and snuggle. My daddy comes up on the weekend to visit. He has to work during the week to pay the bills. My brother Carter comes up too, but he's not allowed to visit me, because he's only 8 years old. The hospital rules say you have to be 12. I miss seeing him and hope in the future to spend more time at home.
My mom had to quit her job, after I was born. Aunt Safa moved back to Georgia, from Maryland, just to help mommy and me. I require lots of love, hugs and kisses. I'm developmentally delayed. That means I can't sit up, crawl, walk, talk or play. I do enjoy music! I'll kick my feet and swing my hands. I've got the best dance moves, you will ever see.
The reason I'm asking for help, is because, I really need help. We've exhausted all the resources in Georgia. The Drs here say, I need to go to a research hospital, like John Hopkins. Guess what, insurance is terrible and getting approval to go out of state, is very challenging. We will continue to try. I don't give up! I'm a fighter! This is a beautiful world. Even though, I haven't seen much of it, I know there's a great big world to explore! Please help me raise funds, so mommy and Aunt Safa can take me to a research hospital. Mommy says I'm so special, I get my own Facebook page! Here's my link
https://m.facebook.com/prayersforcohen
Life's been a journey!!!
My favorite quotes: "We are here to laugh at the odds and live our lives so well that death trembles at taking us."
"But, there must be hundreds of miles of beach and thousands of starfish. You can't possibly rescue all of them. What difference is throwing a few back going to make anyway?" The boy then replied, "It's sure going to make a difference to this one!"
My favorite music: Yanni, Goo Goo Dolls, The Beatles, Pearl Jam, Coldplay, and anything old school.
*** I'm not a big fan of Miley Cyrus***
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