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Leah has Severe Chronic Neutropenia. Her body does not produce a particular white blood cell that fights off infections. This means that any time she gets a fever over 100 degrees she has to be admitted to the hospital. Her condition was discovered 5 months ago when she was admitted to the hospital with a life threatening illness. She was in septic shock. Through genetic testing her condition of neutropenia was discovered.
She beat the odds and recovered from the septic shock, but now must take daily meds injected with a needle by her parents. The side effect of these meds is an increased risk of developing leukemia.
There is a silver lining. A bone marrow transplant would end the frequent trips to the hospital and cure her from this genetic condition. That means no more injections, no more hospital trips for every fever, and a normal childhood and life. Within a week of being put on the bone marrow registry 5 matches for baby Leah were found.
One of the donors has consented to the procedure and Leah is scheduled to enter the hospital on January 28th. Her bone marrow will be killed off and the transplant will take place the first week of February. Leah will be in the hospital for approximately one month and then needs to remain near the hospital for another 3-4 months. Her parents are willing to do what it takes to make Leah healthy, but it will come at a huge financial and emotional toll. Leah's siblings, Elijah age 5, and Natasha age 2, will be staying with family for approximately 4 months due to Leah's compromised immune system. Additionally, the family is moving out of their apartment at the end of the month and will be looking for temporary housing near Oakland Children's Hospital. The Ronald McDonald house is not an option, so they will need to rent a place that they will not have to share with others. Leah will be isolated during these months, with only her parents to provide for her needs. Her mom works when she can, but it has become increasingly more difficult during this time, and Leah's dad is aggressively seeking employment.
Any financial contribution would be greatly appreciated. Please pray for the family's health, finances, and emotional strength during this season. They can see the light at the end of the tunnel, but the short journey to get there will be difficult. Thank you for taking the time to read their story and pray for baby Leah. God Bless!
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