Action Duchenne
£310 raised
62% of £500 goal
27 contributors
5 Years running
Hey my lovable,caring, sharing facebook friends! I'm doing a skydive for www.actionduchenne.org This is for 3 local boys in Derry so please give a donation, big or small as every penny counts x Duchenne Muscular Dystrophy is a severe and progressive ...
Hey my lovable,caring, sharing facebook friends! I'm doing a skydive for www.actionduchenne.org This is for 3 local boys in Derry so please give a donation, big or small as every penny counts x Duchenne Muscular Dystrophy is a severe and progressive muscle wasting disease for which there is no cure. Young people living with Duchenne experience a gradual loss of muscle function including in the heart that without specialist care will lead to early death in late teens. The genetic cause was finally identified in 1987 as a fault in the dystrophin gene on the x chromosome. This results in the loss of a key protein in muscle cells that leads to cell death and deteriorating muscle function. However better medical care over the last 10 years is resulting in the extension of life expectancy. Early use of corticosteroids, ventilation and heart drugs is leading to young men currently living past 30. New genetic treatments are now being trialled that could well lead to future improved life expectancy and quality of life. Action Duchenne needs your help to keep these improvements on track until we find a cure. - A donation of £100 will buy a postdoctural research post for one day who will lead one of our cutting edge research projects. - For £500 you can help us to assess and support young people living with Duchenne for 3 months who have significant learning and behaviour problems - For £50 you can help us to provide support for families through publishing much needed advice and education - For £50 you can help us to offer young people and families information on upcoming clinical trials and support on how to access the best possible care through our DMD Registry. ACTION DUCHENNE SPONSORS A
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