Reagan's Medical Expenses
$620 raised
6 contributors
4 Years running
On November 29th , 2012 Reagan Brown, infant daughter of Lee and Emma (Vaughn) Brown, and sister of Rilynn Brown of Fleming, CO was taken to Children’s Hospital in Aurora. There she would spend two weeks with a high fever, rash, high inflammation and ...
On November 29th , 2012 Reagan Brown, infant daughter of Lee and Emma (Vaughn) Brown, and sister of Rilynn Brown of Fleming, CO was taken to Children’s Hospital in Aurora. There she would spend two weeks with a high fever, rash, high inflammation and high white blood cell count. Her immune system was attacking itself and three teams of doctors were quickly running tests to rule out blood disorders, bacterial infections, various cancers, abscesses, and other rare diseases to narrow down a diagnosis. After thirteen days, an MRI showed fluid on her knees and hips. She was diagnosed with Systemic Onset Juvenile Idiopathic Arthritis.
SOJIA is an autoimmune disease that attacks her entire body. This type of Rheumatoid Arthritis is not limited to her bones and joints but also affects internal organs such as the heart, lungs, eyes, liver, spleen, lymph nodes and nervous system. Symptoms may include joint pain and swelling, eye inflammation, reduced activity levels, weakening of fine motor skills, and impaired bone development and growth, with more intense symptoms should the disease target a main organ. The arthritis flares recur and can last for several weeks and over time the joints can become permanently damaged. Without proper treatment, prescription regimens and physical therapy, this kind of damage can lead to disability. The family does not know how the disease will progress. She is being monitored through blood tests every week. It could be the battle of her life or at any point it could go into remission. Statistics show half of children diagnosed with SOJIA will outgrow it when they enter adulthood, the other half progress into adult Rheumatoid Arthritis. At one year old, she has a long ways to go.
Friends of the Brown family have started fundraising to help this young family with their increasing expenses. They do have insurance to cover most of the medical expenses, however there are many other expenses they are responsible for; two weeks of missed income, deductibles, some medication and anything that insurance will not pay, fuel for all trips made from Fleming to Denver and any future trips to Children’s Hospital and to other doctors’ appointments for monitoring and physical therapy, all of which will be ongoing, possibly into adulthood. If you find it in your heart and would like to help Lee and Emma Brown and their family, they would be very grateful.
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