Seth's Village
$640 raised
11 contributors
5 Years running
Our family is adopting Seth. Seth is a 6 year old boy with Recessive Dystrophic Epidermolyis Bullosa. He was born missing the gene which binds his two layers of skin together. The slightest bump, rub, or even the seams of clothing will cause Seth's ...
Our family is adopting Seth. Seth is a 6 year old boy with Recessive Dystrophic Epidermolyis Bullosa. He was born missing the gene which binds his two layers of skin together. The slightest bump, rub, or even the seams of clothing will cause Seth's skin to blister and fall off. Wounds are similar to that of a burn victim suffering 2nd and 3rd degree burns. Unlike a burn victim, Seth will never heal. He endures daily dressing changes and baths which last up to 5 hours and are horribley painful. He has stricturing in his throat due to scarring and is unable to eat. EB causes webbing of the hands and feet, and eventually an agressive form of skin cancer. He is tortured by this disease daily and does not have the love, or protection of a mother, father, or any family member. Seth lives in a group home. Our family does not think that this is an acceptable way to live. We would like him to come be with us so we can try to save him. We need your help. Seth is in a wheelchair and we do not have a bedroom or a specialized bathroom/medical room to do Seth's dressing changes. We are raising money to build Seth a bedroom. Can you help? Any amount that is raised and not needed for Seth's medical care will be donated to P.U.C.K. (Pioneering Unique Cures for Kids). These are the doctors that come up with cures for the "incurable diseases."
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