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David Househam is a typical 7 year old boy, however, he has a muscle
wasting disease called Muscular Dystrophy. David is special though, he
has Duchenne muscular Dystrophy. Duchenne Muscular Dystrophy (DMD) is
the most common lethal genetic disease of children worldwide. It is
100% fatal. DMD is a progressive weakening defect of all the muscles
in the body, including the heart, and primarily occurs in boys. There
is no cure, no treatment, and no survivors. Approx. 1 in every 2,400
boys worldwide is born with DMD; they die, on average, will usually
only live into their 20s or 30s.David also has muscle defectiveness in
both eyes, this means that he will need an operation where the
anaesthetic could kill him. In September of 2014, he was diagnosed
with osteopenia or osteoporosis (thinning of the bones). This means
that he will need to be in hospital for 3 days every 4 months to have
a course of 4 hours on an IV drip. 4 hours on the drip and 4 hours off
then repeat. Only one parent will be able to stay with him, his
mother, where as his father will have to stay in a B&B. A room
will cost about £25 per night if not more.
David will need a stairlift soon along with a hoist and a
wheelchair. He will be dependant on a wheelchair everywhere he go as
his legs and arms will weaken. His parents will have to feed him, bath
him, clothe him and other every day tasks. He will be in a wheel chair
by age 10.There are typically four phases of the disease;
The early phase (diagnosis to age 7):
Duchenne is usually
diagnosed between the ages of two and seven. Children are delayed in
walking and running and can’t keep up with their peers.
The transitional phase (ages 6 to 9):
Walking becomes
harder – and children lose the ability to climb stairs.
Loss of Ambulation (ages 10 to 14):
At this time, children
with Duchenne will lose the ability to walk and will be in a power
chair full time. They will quite quickly lose the use of their arms
and the muscles in their upper body.Adult phase (15+):
It’s from
this time that the disease affects breathing and the heart. Young
people with Duchenne will need respirators to breathe.
I hope to raise at least £1,000 for his stair lift and possibly
other medical equipment he will need to make his life better.
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