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Joanne Bamford hasn't added a story.
Most of you who know me well will know that my 4 year old Jaydyn suffers from seizures this happens whenever he has a bump or a shock or sudden fright just to mention a few
He will then run to a safe person (usually an adult) his eyes will roll back and his body go stiff untill he passes out in your arms, or if he is unlucky not to get to someone on the floor or where ever he may be
This can be extremely dangerous if we don't get to him in time and so always have to keep an eye on him no matter where he is
This is really affecting his daily life, he is now scared of doing things that would be fun without me by his side eg fun factory, playgrounds and even school!
It is upsetting not seeing him join in on activities with other children his age because he fears the concequences
I have created this fundraising page in hope of raising enough funds to buy a holter ecg monitor that will tell me what is happening to his heart when he has these episodes
WHY HAVEN'T I ASKED THE DRS ABOUT THIS DEVICE?
I have asked the drs and they seem to have no idea what i am talking about. i have been refferred twice seen a cardiologist and been to A&E what seems to be 100 times!!!
I'm starting to feel on my own on this as he is not getting the help he fully deserves
He is my world!!! and i want to know what is happening to him as a parent i need to know!
I am sick of being asked if he is spoilt or does it for attention and want a proper diagnosis for my boy
so please no matter how little you can afford I would be so grateful to get closer to buying this device so i can get the answers i need
thankyou for taking the time to read this
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