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Nolan Philip Reid Eveleigh, born on May 30, 2014, has not had a typical start to his life. He was born with Posterior Urethral Valves (PUV), a condition which affects just one in 8,000 births, and only affects boys. PUV has varied outcomes, unfortunately Nolan's case is serious enough to have severely damaged his kidneys.
At just 12 hours old, Nolan underwent his first surgery. He then spent 12 days in the Neonatal Intensive Care Unit at The Janeway before being transferred to the IWK Children's Hospital in Halifax, as they have pediatric nephrology specialists. After just a few weeks it was determined Nolan has end stage renal failure. One of his kidneys is not functioning at all, the other is only working at 7%. Right now, his condition is being managed with many costly medications, however dialysis is in his future, as well as a kidney transplant when he is big enough. His condition may also affect other areas of his life, there is no way to know for sure until he is older.
Nolan was lucky enough to be discharged from the IWK in July to come home for the first time. He was able to meet his extended family and many friends who were waiting anxiously his arrival. Nolan and his parents have all the love and support they could possibly need, but money is proving to be a challenge. There will be many trips back and forth from Halifax, medications and unknown incidentals. All of this, on top of being new parents, has made for a very stressful summer.
Jan and Phil are like so many of us - get an education, start a career, get married, chip away at the student loans, buy a house, start a family. It is an unfortunate reality they were not blessed with a 100% healthy child. We may not be able to fix that, but we can help them get through this with as little impact as possible to the life they have worked so hard to build. Any amount you can give is appreciated, big or small it all makes a difference.
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