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Help Travis Keseru
£25 raised
2 contributors
4 Years running
Hi, my name is Travis. I am 6 months old and I have a rare genetic condition called Spinal Muscular Atrophy Type 1. Due to my condition I can’t move my muscles and have very limited movement, I can’t support my head and cannot move my arms and legs ...
I will be running the Cardiff Half Marathon on October 6th for this gorgeous little boy.
Please take a minute to read Travis story and donate.
Hi, my name is Travis. I am 6 months old and I have a rare genetic condition called Spinal Muscular Atrophy Type 1. Due to my condition I can’t move my muscles and have very limited movement, I can’t support my head and cannot move my arms and legs very well due to muscle weakness. I also have a lot of difficulty breathing. My condition affects all the muscles in my body meaning I have a lot of trouble with secretions as I can’t cough or swallow very well. This means I am susceptible to illness and chest infections, especially during the winter months.
The life expectancy of a baby with SMA is around 2 years old, but approximately 80% of babies with SMA do not live to see their 1st Birthday. There is currently no treatment/cure for Spinal Muscular Atrophy.
Any donations raised will go towards my care and also to buy any specialist equipment and things to make my life happier and more comfortable.
Our biggest wish is for Travis to be with us at Christmas so we are able to take him on a special Christmas break and make some very precious memories together as a family.
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