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Ks Ride for the Cure (Neurofibromatosis)
$200 raised
40% of $500 goal
2 contributors
4 Years running
Keara was diagnosed with NF1 when she was 9 months old. She is now 6 and has multiple tumors on her inner spine, both her arteries in her neck, knees, and feet. Keara also has an immune deficiency that impairs her to not socialize with others often
Keara was diagnosed with NF1 when she was 9 months old. She is now 6 and has multiple tumors on her inner spine, both her arteries in her neck, knees, and feet. Keara also has an immune deficiency that impairs her to not socialize with other children (due to her getting sick so much) We don't know what is going to happen this year if she can go to school. We just want our little girl to be able socialize with others. She is progressing with NF1 and also has depression, ADHD, anxiety, and being tested for learning disabilities. We spend much time at Boston Children's Hospital and Mass. General Hospital. I cannot work and it's difficult. We don't have much socialization out of the home. We need the awareness out there and most important, we need a cure for our little girl and anyone who suffers this horrid disorder
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