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My son Justin, "Property of God"
$105 raised
1% of $8k goal
5 contributors
0 days left
Ended Sep 7, 2013
My son Justin is twenty-three years old; he was born with a Cleft Lip/Palate and other congenital defects. Since his birth, he has had twenty-two surgeries. It is felt by some doctors that, either he had a stroke or viral infection in the brain around the
My son Justin is twenty-three years old; he was born with a Cleft Lip/Palate and other congenital defects. Since his birth, he has had twenty-two surgeries. It is felt by some doctors that, either he had a stroke or viral infection in the brain around the 18th surgery or he has anesthesia brain damage from so many surgeries. He lost his sense of smell and starting displaying very disturbing behaviors. He even started injuring himself and our pets. He lost most impulse control. Recently a doctor discovered that he, as well as my other four children, has a genetic mutation on chromosome 1q44. I have two other sons with seizures. One is in college and the other is getting ready to go. I also have a son that is twenty with a diagnosis of Aspergers.

Justin's medical problems have changed our lives to a degree that most people could never comprehend. My husband is a disabled veteran and I work from home. Justin's behaviors and cognitive issues became so severe that we had to place him in a state group home for about fifteen months for everyone’s safety. In 2011, the State of Texas offered him a slot in a program for adults with disabilities; he had been on that waiting list for at least ten years. Therefore, we enrolled him in it and moved him back into the community; life has been so hard. He receives eighty-four hours per week habilitation (attendant care). This serves to help him function in the community, help take care of him, and keep him safe. He wants to change; he wants his old life back. He resents the fact that he has to have a guardian.

The typical tests have been ran. Many medications have been tried and failed. God has led me to a doctor that we have been trying to see for over three years. We have insurance but the clinic he needs to go to for treatment does not take our insurance. We are required to pay the procedure fees of $1000.00 per week of treatment out of pocket; payment is required at the beginning of each week. In addition, we would need to travel out of state about twice a month and stay in the area for treatment. That requires even more money. If he is out of our state for more than 2-3 weeks, he could lose the program he is on permanently and our only choice then would be to place him back into the state institutional setting for the rest of his life.

We want our family back; he wants his life back. I have prayed for help. I have sought out many resources and have been unsuccessful. God has brought me here. The procedure we need to try is Hyperbaric Oxygen Therapy; Dr. Paul Harch is renowned in the neurological field. His work has featured in many news programs. He also treats soldiers returning from overseas with traumatic brain injuries. The links below will help you better understand his research and treatments. We feel he is our only hope to help our son.

Justin has hopes and dreams, just as we all do. As a mother, I will do everything I can to help my son. However, he is not my only child with medical problems or special needs; I cannot do it alone. He is gifted in art but cannot get into college to take classes because was not able to finish school due to the increase in learning disabilities. He wants the same things in life that his siblings want. He wants a life, a job, a family, and to reside in the community. I pray that his story touches your heart and you will help in any way you can. The minimum donation through this program and PayPal, is $5.00. Please reference the following documentation and Dr. Harch’s website.

Warmest Regards,
Sheri


http://www.hbot.com/
http://www.cbsnews.com/8301-18563_162-5209366.html
http://www.anh-usa.org/will-the-white-house-finally-bring-hbot-to-wounded-vets/
http://www.youtube.com/watch?v=KnzlujlLOdQ
http://www.youtube.com/watch?v=8kj1Rszax8w
https://www.facebook.com/pages/Harch-Hyperbaric-Oxygen-Therapy-Inc/103461553073434
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