Your share could raise $30
Before you go, did you know that simply by sharing this campaign, you could help it raise $30? It's an effective way to support the cause.
No thanks- Pin it
- SubscribeUnsubscribe
- Embed
Robin Smith hasn't added a story.
I adopted my sweet Bethany Grace when she was a few weeks old from a drug addict.
Bethany "Grace" Dixon Age 6 was diagnosed with Spinal Muscular Atrophy Type II when she was 16 months old. It has been a journey our family had NEVER expected to take. That dreaded day in August 2007 changed our lives forever.
Grace is a Sweet, fun loving, very talkative & outgoing girl who loves Nick Jr, her brother's & the color red. She finds a friend in EVERYONE she meets!
Spinal muscular atrophy (SMA) is an Autosomal Recessive disease caused by a genetic defect in the SMN1 gene that codes SMA, a protein widely expressed in all Eukaryotic cells. SMN1 is apparently selectively necessary for survival of motor neurons, as diminished abundance of the protein results in death of neuronal cells in the anterior horn of spinal cord and subsequent system-wide muscle wasting (atrophy).
Spinal muscular atrophy manifests in various degrees of severity which all have in common general muscle wasting and mobility impairment. Other body systems may be affected as well, particularly in early-onset forms. SMA is the most common genetic cause of infant death.
The term spinal muscular atrophy is used as both a specific term for the genetic disorder caused by deficient SMN, and a general label for a larger number of rare disorders having in common a genetic cause and slow progression of weakness without sensory impairment caused by disease of motor neurons in the spinal cord and brain stem.
Type II The intermediate form affects children who are never able to stand and walk but who are able to maintain a sitting position at least some time in their life. The onset of weakness is usually noticed some time between 6 and 18 months. The progress is known to vary greatly, some patients gradually grow weaker over time while others through careful maintenance avoid any progression. Body muscles are weakened, and the respiratory system is a major concern. Life expectancy is somewhat reduced but most SMA II patients live well into adulthood.
Grace is completely wheelchair bound and fully dependent. Her wish is to be able to go places other than Dr, Hospital visits, surgeries, PT, OT and school. At this time, I have no way to transport her safely and comfortably with her wheelchair so she has to go in her car seat and then has to be carried. She is becoming to heavy to carry around and would love to be able to be independent with her power wheelchair!
Please HELP spread the word, make a donation and help make Graces wish come true!! Thank You & GOD BLESS!
Highlights
See all activity1Activity
Delete media item?
Delete this item from the media gallery? It will also be deleted from any related story update.
Set as ?
The campaign video will appear in social media and email.
The campaign cover picture will appear in social media and email.
The will appear at the top of your campaign page and in social media and email.
Reset ?
It will be removed from the top of your campaign and won't be used as default in social media and email. The will remain in the media gallery.
Embed
Share a link
Delete update
Delete this story update?
Any pictures or videos will remain in the campaign's media gallery.
Report campaign
Report submitted
Thank you. We take reports like yours very seriously. Our goal is to keep the community safe.
Please know that we may contact you for more information, but that we won't notify you personally of our decision. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Thank you. We've already received your previous report. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Tell us about the problem. Please fill in both fields below.
Record a video
Upload a video
Nothing grabs attention for your cause like a personal video. Take a minute or two to record one now. Record a short video message of support. Or upload one from your device. You can preview or redo your video before you post it.
Nothing grabs attention for your cause like a personal video. Upload a short video message of support. Upload a short video message of support. Or record one right now.
- Most effective video length: about a minute.
- Maximum length: 5 min.
- You can preview or redo your video before you post it.
Heads up! The existing video will be replaced.
Email your friends
Join our team
Tell people why our cause matters to you. Your personal message will encourage others to help. Easy, effective, optional.
Say it in video
Short personal videos by supporters like you are incredibly powerful. Record one right now and you'll help us raise more money. Easy, optional, effective.
Add a personal goal
Set a personal fundraising goal. You'll encourage more contributions if you do. And rest easy. There's no obligation to achieve your goal or bad consequences if you don't. Easy, optional, effective.
We have a video!
Video thumbnail
We'd love to show you our campaign video. Want to take a look?
, you're already on the team.