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Jackie Jack Sortino hasn't added a story.
I have never asked for help so this is hard for me....
I have had epilepsy since I was two and a half. I have had thousands of seizures since then and I've been on all kinds of medications to prevent or stop my seizures; NOTHING has worked. In the past three years my seizures have increased and gotten much worse... the doctors are not giving me a reason WHY. The medications I am on are causing severe migraines and the migraines are leading to more seizures. I've had numerous trips to the ER but they can only do so much until the seizure stops.
The humidity that comes with the Rochester weather is also causing my seizures to flare up. I have spent many days inside because it's to humid for me to be outside. Due to this I am currently out of work on disability.
I don't want anyone to feel bad for me because I don't feel bad myself. At this time I need to seek medical attention elsewhere. UCLA has the best technology and has some of the best Neurologist in the country. I don’t have the money to pay for travel expenses let alone the medical care out in California (my insurance does not cover out of state care)
I’m NOT willing to just settle for the continuous changing of medications; which I've been doing for 28 years. I would love to be seizure free and not have to worry if today is going to be another day battling a painful seizure. The money that is raised will pay for my medical care out in California.
I want ANSWERS and I would love to be SEIZURE FREE!!
Any help would be appreciated!!! Thank you in advance!!
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