Before you go, did you know that simply by sharing this campaign, you could help it raise £30? It's an effective way to support the cause.
No thanksGeorgina Horton-Jones hasn't added a story.
Firstly I would like to add that I absolutely HATE heights..EEK! But...
I am doing this skydive to raise money for two charities very close to my heart, the first being the Child Growth Foundation UK who without their support, knowledge and the research they do my daughter Isabella would still be undiagnosed now. It was through the CGF that I found support and information leading to a specialist in London who specialises in a very rare form of primordial dwarfism called Russell Silver Syndrome.
This is such a rare syndrome that my daughter has, that she is one of only 2 known in Wales, UK that have RSS. Without the CGF and the specialist I wouldn't have the support Isabella needs.
The CGF rely on fundraising to continue the work and research they do, so I am hoping people will join me and help me fundraise for this wonderful organisation. They support not only RSS but other syndromes too, and host an annual convention where they have specialists who come and give advice, talks/workshops and answer any questions parents have. It is also a wonderful time to meet with other parents who have children with the same syndrome as yours, Isabella loves meeting other children who are small like her.
More information on the convention and all the CGF do is on their website.
http://www.childgrowthfoundation.org
UNIQUE is the leading charity providing specialist information and support to families coming to terms with a diagnosis and the medical professionals caring for them.
New technology means many more children than ever before are being diagnosed. In the last year alone more than 1,000 parents approached us for help, straining our limited resources.
Without the donations and brilliant fundraising efforts of our members, supporters and friends, they simply couldn’t go on providing our services to help anyone born with a rare chromosome disorder.so your help is gratefully appreciated.
Please take a look at their website:
http://www.rarechromo.co.uk/html/home.asp
My daughter Isabella also has a website which tells you all about her, and what Russell Silver Syndrome is and how some of the issues that having this rare syndrome affects her.
Please take a look:
http://www.isabellasbigdreams.co.uk/
People just like you have raised $158,000,000+ for causes they and their friends care about.
Start your own campaignDelete this item from the media gallery? It will also be deleted from any related story update.
The campaign video will appear in social media and email.
The campaign cover picture will appear in social media and email.
The will appear at the top of your campaign page and in social media and email.
You can add to a tab on any Facebook Page which you manage.
Please note that as of Nov 2017, only Pages with 2,000+ fans are able to install custom tabs.
How to remove a Page tab It looks like you don't have a Facebook Page yet. How to create a Facebook Page It looks like you don't have a Facebook account linked. Click here to edit your account settings
Facebook Page | Fans | Campaign | Action |
---|
Delete this story update?
Any pictures or videos will remain in the campaign's media gallery.
Report submitted
Thank you. We take reports like yours very seriously. Our goal is to keep the community safe.
Please know that we may contact you for more information, but that we won't notify you personally of our decision. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Thank you. We've already received your previous report. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Tell us about the problem. Please fill in both fields below.
Nothing grabs attention for your cause like a personal video. Take a minute or two to record one now. Record a short video message of support. Or upload one from your device. You can preview or redo your video before you post it.
Nothing grabs attention for your cause like a personal video. Upload a short video message of support. Upload a short video message of support. Or record one right now.
Heads up! The existing video will be replaced.
Tell people why our cause matters to you. Your personal message will encourage others to help. Easy, effective, optional.
Short personal videos by supporters like you are incredibly powerful. Record one right now and you'll help us raise more money. Easy, optional, effective.
Set a personal fundraising goal. You'll encourage more contributions if you do. And rest easy. There's no obligation to achieve your goal or bad consequences if you don't. Easy, optional, effective.
Georgina Horton-Jones is managing the funds for this campaign. The campaign is for a personal cause.
, you're already on the team.