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Charity Skydive For Child Growth Foundation/UNIQUE
£350 raised
70% of £500 goal
13 contributors
3 Years running
Firstly I would like to add that I absolutely HATE heights..EEK! But... I am doing this skydive to raise money for two charities very close to my heart, the first being the Child Growth Foundation UK who without their support, knowledge and ...

Firstly I would like to add that I absolutely HATE heights..EEK! But...

I am doing this skydive to raise money for two charities very close to my heart, the first being the Child Growth Foundation UK who without their support, knowledge and the research they do my daughter Isabella would still be undiagnosed now. It was through the CGF that I found support and information leading to a specialist in London who specialises in a very rare form of primordial dwarfism called Russell Silver Syndrome.

This is such a rare syndrome that my daughter has, that she is one of only 2 known in Wales, UK that have RSS. Without the CGF and the specialist I wouldn't have the support Isabella needs.

The CGF rely on fundraising to continue the work and research they do, so I am hoping people will join me and help me fundraise for this wonderful organisation. They support not only RSS but other syndromes too, and host an annual convention where they have specialists who come and give advice, talks/workshops and answer any questions parents have. It is also a wonderful time to meet with other parents who have children with the same syndrome as yours, Isabella loves meeting other children who are small like her.

More information on the convention and all the CGF do is on their website. 

http://www.childgrowthfoundation.org

UNIQUE is the leading charity providing specialist information and support to families coming to terms with a diagnosis and the medical professionals caring for them. 

New technology means many more children than ever before are being diagnosed. In the last year alone more than 1,000 parents approached us for help, straining our limited resources. 

Without the donations and brilliant fundraising efforts of our members, supporters and friends, they simply couldn’t go on providing our services to help anyone born with a rare chromosome disorder.so your help is gratefully appreciated. 

Please take a look at their website:

http://www.rarechromo.co.uk/html/home.asp

My daughter Isabella also has a website which tells you all about her, and what Russell Silver Syndrome is and how some of the issues that having this rare syndrome affects her.

Please take a look:

http://www.isabellasbigdreams.co.uk/

Isabella in her new wheelchair

Booking confirmation

Wonderful views I will be experiencing when I do my skydive (if I can keep my eyes open lol!)

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