Michael's Flight and Fight!
$845 raised
42% of $2k goal
15 contributors
4 Years running
My miracle Michael has dealt with hemi-paresis from a stroke for 14 years but now at 15 from the brain damage his autonomic system sporadically shuts down, dysautonomia, and it is a roller coaster please read Michael's story. When Michael was born he ...
My miracle Michael has dealt with hemi-paresis from a stroke for 14 years but now at 15 from the brain damage his autonomic system sporadically shuts down, dysautonomia, and it is a roller coaster please read Michael's story. When Michael was born he suffered a stroke from trauma caused by negligence. For 14 years we were blessed to only have to worry about spasticity and right sided paresis from the stroke. We didn't find out about his brain damage until he was 1 year old because the malpractice was covered up and so the road to recovery and early intervention started then. Michael spent 3 days out of every week going to occupational, physical, and speech therapies and routine visits to the neurologist and orthopedic doctor. I always taught Michael to take what he was given and roll with it and so therefore his frustrations were high because his abilities were low next to his peers but I always taught him that if you work harder you have accomplished more and you work harder than the next kid so you have accomplished more. With that being said Michael played soccer, baseball, and the guitar and he strived to do the best at everything. Finally the comfort set in that it was this and that we could handle this and Michael's disability was just everyday life for all of us until October 14, 2012 when Michael passed out. Michael started having syncope episodes then seizures and next followed hypothermia and tachycardia, dementia hallucinations and after 6 months and 7 doctors he was diagnosed with secondary dysautonomia to the stroke that he suffered. The doctors say from the abrupt physical and chemical changes from puberty and growing up and the location of his brain damage his autonomic system can’t keep up. Wow his autonomic system, that controls everything that keeps you alive it is your fight or flight system, it tells your heart to pump blood through your body it tells your body to keep your temperature from overheating or freezing it controls your breathing and every other involuntary thing your body does and my son is now facing these challenges along with everything else at the hard age of 15. He has a surgery coming up in October he was just in Shands Hospital for 5 days he is having some cardiac issues this week and every week we face a new challenge. He has been to 4 major hospitals 13 different specialist and we have a long hard road ahead of us they all say. Michael has a very special and strong 10 year old sister, Lillian, and she is our rock! When he gets depressed she is who he turns to and at 10 years old she is such an inspiration to him and even to me. Lillian had to do a paper on "all about me" where she wrote of her ambitions and goals in life her hobbies and her favorite things but one question given was "What is your one wish in life" her answer was that her brother would be healthy! At 10 I know I was wanting to fly fighter jets swim with dolphins meet Pete Rose and her answer justifies my statement of how much of an amazing and special 10 year old she is, Lillian is our column holding us all together. I have been trying to keep Lillian's life as normal as it was before her brother became sick, I have been trying to be at work as much as possible but with the autonomic dysfunction being so sporadic it is impossible for me to keep up with my very intense job and medical bills are piling up so we are asking you, if you can help, make Michael's mountain climb a walk in the park! Thank you Bess Hebert
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