Help us fight Neurofibromatosis!
$2,680 raised
54% of $5k goal
39 contributors
4 Years running
When Hudson was a few weeks old, we noticed he had a couple birth marks. "No big deal", we thought. I too had one. By the time he was 8 weeks old though, he had 5. We still weren't overly concerned, until our doctor suggested a dermatologist examine ...
When Hudson was a few weeks old, we noticed he had a couple birth marks. "No big deal", we thought. I too had one. By the time he was 8 weeks old though, he had 5. We still weren't overly concerned, until our doctor suggested a dermatologist examine him. Then we became curious. Curiosity can turn into your biggest nightmare when you look up "multiple cafe au lait birthmarks" on the internet, and read for the first time, "Neurofibromatosis" (NF1). Suddenly, the most horrifying images appeared on the screen--the "elephant man", people with parts of their faces literally falling from where they should be, people covered in so many bumps that they were no longer recognizable. This is what our beautiful baby had in store for him? We were in disbelief. Denial. This was not, and would not be the life our Hudson would have. In April of 2012, Hudson had an MRI to check for hydrocephalus--yet another issue that can occur in people with NF1. Though Hudson was clear of having this presentation, the MRI revealed something even scarier--a substantial brain tumor that spanned from Hudson's optic nerve to his hypothalamus. The world that we had all pieced back together since Hudson's initial diagnosis, once again fell apart. This time however, we were determined to be even stronger for Hudson.
Hudson began chemotherapy in August of 2012, just before his 3rd birthday, and will continue to undergo treatment for eighteen months. He will have MRI’s every three months to check his progress, and will continue to see many specialists throughout his lifetime. As NF1 is a progressive disorder, Hudson may never completely be out of the woods for many things, and his future is uncertain.

Neurofibromatosis is a genetic disorder of the nervous system that occurs in approximately one in every 3000 births. Tumors, or neurofibromas, can grow along the body's nerves on or underneath the skin, and can affect the brain, spinal cord, and other systemic functioning; approximately 5% of tumors become cancerous. Nearly 50% of children with NF1 have speech problems, learning disabilities, seizures, or hyperactivity. Individuals with NF1 may also have headaches, heart defects, scoliosis, bone abnormalities, high blood pressure, or blood vessel disease. There is no cure for NF1, and treatment includes surgery, chemotherapy, and radiation.
Luckily, Hudson is such a happy little boy who takes everything in stride, and lives purely in the moment. His infectious laugh makes your heart melt, as he is unaware of his terrible disorder........Please help!

Your donations will go towards Hudson's chemotherapy expenses, and also to the Children's Tumor Foundation, who strives to find a treatment, and ultimately a cure, for Neurofibromatosis.
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