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Tyler is my older son; he turned 15 last November. About a year and a half ago, he had a seizure at school that lasted about ten-fifteen seconds in duration and involved the whole body (tremors/jerks). He came to right away with no disorientation or sleepiness so it was not termed a grand mal seizure, even though it strongly resembled an abbreviated version of one. The pediatrician recommended neurology follow-up, so we went to his neurologist who ordered a sleep-deprived EEG and a MRI. The EEG showed four abnormal spikes so a 24-hour EEG was performed, and showed NO abnormal spikes. A third, 48-hour EEG showed one abnormal spike. The first MRI, on the other hand, indicated a "mild" Arnold-Chiari Malformation Type I, or Chiari for short. The neurologist referred him to a neurosurgeon who did another MRI which measured it as a 4.1mm herniation. A CSF Flow Study w/o contrast indicated that there was no disruption of the CSF flow at that time. But the seizure has gone unexplained, and as of this writing has not recurred. However, Tyler is now experiencing a few more "mild" Chiari symptoms, and must again be evaluated, possibly with another MRI and Flow Study. Here is where you all come in. We put the kids on the state Health Choice insurance (a Medicaid program for which we pay $100/year), but the plan was not effective until December 2012, after the initial doctor visits and first EEG and MRI. Everything after December 2012 has been covered; but with my husband not making a lot of money as a local truck driver, and me being a full-time college student, we have not been able to pay the balance at his neurologist's office. They now will not see him or even provide us with a letter for the state DMV (school requiring us to get it before they allow him to take Drivers Ed) until that balance is paid IN FULL. He needs to be seen soon, considering that his headaches have become more frequent and he now has numbness/loss of feeling in his extremities as well as dizziness/lightheadedness. Chiari is the only possible explanation for the new symptoms; we have eliminated all other possibilities. We would ideally like to have him seen before the new school year begins in August, and hope that this Fundrazr will make that possible. Otherwise I don't know when we would be able to pay the bill, if ever. I would be happy to show the statement I received from Dr. Dayal's (a pediatric neurologist in Charlotte), as soon as I can get it uploaded. As of my last conversation with her office, the balance was just shy of $800. I have set this Fundrazr for precisely $825 (to help cover some of the Fundrazr and Paypal fees). Thank you all for considering helping my son!
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