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Help save a life EHLER DANLOS SYNDROME awareness
£640 raised
13% of £5k goal
23 contributors
3 Years running
EHLER DANLOS SYNDROME Ehler danlos syndrome is a group of inherited conditions that affect collagen proteins in the body. People who suffer with EDS dislocate joints on a daily basis,  have stretchy skin, loose joints and fragile body ...

EHLER DANLOS SYNDROME

Ehler danlos syndrome is a group of inherited conditions that affect collagen proteins in the body. People who suffer with EDS dislocate joints on a daily basis,  have stretchy skin, loose joints and fragile body tissues.Collagen is what holds our bodies together and supports various body tissues. it is found in tendons, cartilage, ligaments,  bone, skin, blood vessels the gut and spine.

A lot of people who suffer from EDS have a life expectancy into there 50's and some die much younger due to vascular issues, cardiology issues and are prone to hemorrhaging in the body especially in the brain due to balooning of arteries EDS is a degenerative condition and there is no cure.

most people with EDS use a wheelchair, walking aids and have support braces to prevent dislocations. operations can be life threatening even minor surgery

The money that is raised will be used for awareness building all over the uk, for genetic research and to help support families who suffer with the condition

In october EDS UK will be holding a Residential Conference from the 24th-26th....come along and educate yourselves and meet people who suffer with Ehler Danlos Syndrome.

for more information visit www.ehler-danlos.org/online-shop/events/eds-uk-s-residential-conference-2014-detail 

May is Ehler Danlos Syndrome awareness month.....I however am making it my life mission to build awareness and raise enough money to help with genetic testing and help those who are suffering with EDS. I am a 29 year old woman with Ehler Danlos Syndrome and have a beautiful 3 year old daughter who also has EDS I struggle on a daily basis to live a somewhat normal life but I am always smiling and am probably one of the most positive people my friends and family know....I need to raise enough money to enable the research is done and the awareness has been built to a level where the next generation can have even more help available and a better genetic understanding so please dig deep and donate to a well deserved cause and to all.....always stay blessed and no matter how hard life gets keep smiling!

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Perks

£100
cake and treats hamper from Yumelli's Custom Cakes
  • 2 claimed
YUM YUM YUM..Cake & treats hamper from Yumelli's Custom Cakes filled with lots of goodies....cake pops, chocolate truffles, sweety kebabs and a Zebra print cake.

Yumelli's is run by people with Ehler Danlos Syndrome and the profit they make is donated to awareness building of Ehler Danlos Syndrome and various other rare and invisible disabilities and illnesses.
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£250
Brand new pair of black size 5 ugg boots
  • 0 claimed
  • 1 remaining
These have been donated as a gift for the first person who donates £250.

Brand new pair of size 5 black ugg boots retail price of £200
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