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As the event is sold out, thank you for donating directly to
GOSH here: http://uk.virginmoneygiving.com/GoForGosh2014
150
minutes of LesMills BODY COMBAT
WE’RE BACK BIGGER, LOUDER and DIRTIER
Featuring: Adele Kirby,
Zoe Walker, Natalia Hunt, Ira Ginzburg,
Barrio Walterio &
Alexandra Cornish
Bringing you the most driven, inspirational and energetic songs we can find ...just in time for summer! Join us for an all-out, top of your lungs, fat-burning event
Sunday 6th April 2014
Signup: 13:45-14:10
Marathon: 14:15 -16:45
Cool down: 16:45-17:00
FITNESS FIRST Tottenham Court Road
Queen’s
Yard, London W1T 7PA
Nearby stations: Goodge St, Warren St,
Euston Square
In aid of Great Ormond Street Hospital
With admiration for long time patient Robyn Fellows
Please spread the word and encourage donations!
THIS EVENT IS NOW FULLY BOOKED
~
From Simon & Jane Fellows, Robyn's parents:
Robyn Fellows was born on the 4th of January 2003 and soon diagnosed with Achondroplasia, a condition which restricts growth in the long bones of the body - a common cause of dwarfism.
She grew into a happy baby, then a sweet and bubbly toddler ...but as the effects of her condition became more apparent, we realised we desperately wanted her to live as normal a life as possible. At the age of 3, we made the agonising decision for her to seek medical help to lengthen her limbs; we were transferred from our local hospital in Pembrokeshire, Wales to the care of Dr Christopher Bradish at Great Ormond Street Hospital in London.
Over a period of 6 years Dr Bradish undertook every one of the 12 long operations Robyn received - tedious processes to lengthen her limbs, involving external constructions and up to 9 hours of surgery at a time. As of 2014 and the age of 11, through a long and arduous journey, she has gained a massive 9 inches in her legs and an impressive 3 inches in her arms.
It has been a long hard 6 years with lots of tears and fears along the way, but the love and support we have had from both family and friends has been phenomenal - as has the support we received from GOSH without which we could not have got throughout this journey.
The money raised by such caring people as yourselves goes a huge way to helping families like us. We live over 250 miles away from the hospital and during treatment had to make the journey to London every 2 weeks. The money raised not only goes into the research and upkeep of such a groundbreaking hospital but also provides accommodation so that families like ours can be near our children when they need us most.
Great Ormond Street hospital has a very special place in our heart and we shall always be grateful to all who work there and those that support their work. It is thanks to them and you we have the confident happy little girl (or thankfully not so little now!) that Robyn continues to be today.
She has not and never will let any of her disabilities stand in her way! She is sport mad and took up Disability Rhythmic Gymnastics over 4 years ago, rising to Welsh champion 3 years running and having a haul of over 30 medals of which most are gold. She now swims for the Pembrokeshire Puffins, a disability swimming club, and both hopes and works for success in this field, applying much of her characteristic determination (and, dare we say it, stubbornness...?) Here's to hoping for Rio 2016!
http://en.wikipedia.org/wiki/Achondroplasia
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