Help Cody with his fight against P.A.N.D.A.S.
$1,645 raised
21% of $8k goal
12 contributors
4 Years running
Cody was diagnosed at the age of 5 with Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus (P.A.N.D.A.S.). Cody has been battling with this curable illness for three years now. Cody's Autoimmune Immunologist is one of a few ...
Cody was diagnosed at the age of 5 with Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus (P.A.N.D.A.S.). Cody has been battling with this curable illness for three years now. Cody's Autoimmune Immunologist is one of a few specialist who specializes in this illness and we have to travel from Georgia to Connecticut every two months for IVIG infusions which are performed over a two day period. As of October 2012 our insurance decided against two appeals from his Doctor that the IVIG infusions are not working. This is not true as he has gone from being a completely normal healthy happy child to in the middle of the day turning into a differant child. A child who was afraid he had germs crawling all over him so he would have to wash his skin non-stop to the point of being raw and sometimes bleeding. He would have night terrors and urinary frequency. Developed Syndehams Chorea (hand and body tics), over time developed vocal tics such as tourettes. The OCD and tourette symptoms where just that symptoms of an autoimmune attack on his brain. He was vaccinated at the age of 5 soon before this started and had an ear infection which was actually strep in the ears. This sent off an autoimmune attack where the antibodies mistakenly turn on his own body's cells and duplicate out of control and race to the brain and causes the brain to swell which leads to all the symptoms listed above as well as rages, suicidal thoughts, cognitive regression such as short term memory, fine motor skill deteriation. With the IVIG infusions and daily antibiotics Cody has gone from being hospital homebound with school and being almost disabled and not able to leed a normal happy childhood to being able to attend school again, relearned his academics and can leed a pretty normal life again with OCD and tourette like symptoms he still battles almost on a daily basis. However, now has better control on how to deal with these issues. They still take over his happy childhood at times. Also with P.A.N.D.A.S. this is an autoimmune illness and causes him to have a weakened immune system. Therefore, we are constantly afraid of him getting sick as his chances are extremely heightened. He can not travel commercially or attend public school do to risk of exposure. He is doing so much better with his infusions for someone who has never met him to go against his Doctor who see's him on bimonthly visits to decide they know whats best for my son is obsured. With P.A.N.D.A.S. the white blood cells rise and fall with exposure. This is not a one treatment cures all. It is still experimental and Cody still has a long way to go. Please open your heart and learn about P.A.N.D.A.S. and educate others. You may just save a life. Right now I am asking for help in saving my son's. Although he is doing so much better he can relapse without his treatments. We are seeing the symptoms and the infections of viruses and bacterial increasing without his treatments. Please share his story and help him to get the medical help he needs to make a full recovery. the expense alone with traveling every two months and having to take off of work was hard with insurance and now without is nearly impossible. Thank you, Cody's Mom
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