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Leza Frazee hasn't added a story.
Let's be real here. I've been given the short end of the genetic stick when it comes to inheritable health conditions. Autoimmune disease runs on both sides of my family. Vascular disease, too. Mom's side gave me Ehlers-Danlos Syndrome Type 3/Hypermobility Syndrome--of which one daughter thus far has been diagnosed with through Genetics. That gave me EDS along with early onset osteoarthritis (late teens from what they tell me). Add to that some genetic hypercoagulation of the type eight kind, Secondary Intracranial Hypertension brought on by anemia requiring lifelong iron infusions due to malabsorption. Malabsorption? Yeah. After hearing for YEARS that all my health problems would go away if I would JUST. LOSE. WEIGHT. Well, mission accomplished! I've lost nearly 200 pounds and I've kept nearly all of it off despite all my illnesses. But in exchange, I do not absorb oral iron supplements. Add to that the Psoriatic Arthritis on Dad's side that has sent me under the Orthopedist's knife twice since December 2013, caused calcific tendonitis of the shoulder by age 35, rotator cuff tears at age 38, complete replacement of the left Achilles' tendon with reconstruction of the heel at 37 and I am STILL rehabilitating from the inpatient shoulder surgery in early January 2015.
My lawyer wants me to focus on getting OUT of the high altitude. While there's no guarantee that getting off the mountain will prevent the clots, embolisms, strokes or vasculitis that the blood testing CLEARLY SHOWS I HAVE, it will take the extra pressure off my eyes, brain & spinal cord, therefore reducing the risk for the previously mentioned. It will also allow my wife and children to be surrounded by and/or living with close family in the event that something happens and I am in the hospital or incapacitated and unable to care for them, which is something not available to us here.
We are starting the appeals phase after losing my initial face to face hearing on March 23rd. My lawyer is suggesting from a legal standpoint that I go to a safe place, then from there, she will submit a change of venue.
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