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Tyler Maxwell Fundraising - Help me to walk!
£10 raised
0% of £6k goal
1 contributor
0 days left
Ended Feb 4, 2014
Early Life My name is Tyler Maxwell and I am now 5 years old, I have Spastic Diaplegic Cerebral Palsy and I need your help raising funds to help me to walk. Please share with your friends too! Visit us at www.tylermaxwell.org

Early Life
My name is Tyler Maxwell and I am now 5 years old, my Mummy, Karen had a complicated pregnancy before I was born and I was expected to be delivered by emergency C section. I was born on the 18th June 2008 - nine weeks premature and weighing just 2lb 14oz. I spent the first few days of my life Intensive care, in total I spent the first seven weeks of my life in Special Care Baby Unit at Peterborough Hospital.

I had a bleed on my brain within the first seventy two hours of my life and although Mummy was told I was going to be fine, when I was eleven months old I still could not sit or Roll let alone stand or walk. In May 2009 I was diagnosed with Spastic Diaplegic Cerebral Palsy, my right side is worst but all four limbs are affected.

Mummy and I attended Conductive Education in Birmingham from April 2010 to Sept 2012 and we spent 3 nights a week In Birmingham, with 5 hours a day of schooling and physiotherapy.

Fundraising and my operation
Mummy started raising funds for an operation called Selective Dorsal Rhizotomy (SDR) in America in May 2011. The 4 hour operation costs £40,000 and was not funded by the NHS. Many events were organised including a Skydive, a 63 mile sponsored cycle ride and a Charity Ball along with other musical themed events in the Peterborough area. In just 4 months the money had been raised thanks to the generosity of local firms and individuals who gave up their time to help me walk.

Although there was a long waiting list, I had my operation at St Louis Children's Hospital in Missouri, USA on 7th June 2012. The operation was carried out by Dr T.S. Park. Dr Park is Neurosurgeon-in-Chief at St. Louis Children’s Hospital, and is one of the nation’s leading paediatric neurosurgeons.

Post operation
Since my operation I have much more control over my limbs and as part of the rehabilitation I have made two trips a week to the specialist Cerebral Palsy Physiotherapy Centre for Selective Dorsal Rhizotomy in Flitwick, Bedfordshire. I also make two, week long trips a year to Scotland for an intensive core muscle strengthening programme.

In June 2013 I was awarded the Pride of Peterborough award for Child of Courage which was presented to me by Sam Womack.

The Future 
I'm hoping I will be able to walk unaided eventually and I've been making some great progress with sitting up and crawling since my operation, but I will still need Physiotherapy and trips to Scotland for a long time, all of which is not covered by NHS funding so Mummy still needs your help. 

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