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Early Life
My name is Tyler Maxwell and I am now 5 years old, my Mummy,
Karen had a complicated pregnancy before I was born and I was expected
to be delivered by emergency C section. I was born on the 18th June
2008 - nine weeks premature and weighing just 2lb 14oz. I spent the
first few days of my life Intensive care, in total I spent the first
seven weeks of my life in Special Care Baby Unit at Peterborough Hospital.
I had a bleed on my brain within the first seventy two hours of
my life and although Mummy was told I was going to be fine, when I was
eleven months old I still could not sit or Roll let alone stand or
walk. In May 2009 I was diagnosed with Spastic Diaplegic Cerebral
Palsy, my right side is worst but all four limbs are affected.
Mummy and I attended Conductive Education in Birmingham from
April 2010 to Sept 2012 and we spent 3 nights a week In Birmingham,
with 5 hours a day of schooling and physiotherapy.
Fundraising and my operation
Mummy started raising funds for an operation called Selective
Dorsal Rhizotomy (SDR) in America in May 2011. The 4 hour operation
costs £40,000 and was not funded by the NHS. Many events were
organised including a Skydive, a 63 mile sponsored cycle ride and a
Charity Ball along with other musical themed events in the
Peterborough area. In just 4 months the money had been raised thanks
to the generosity of local firms and individuals who gave up their
time to help me walk.
Although there was a long waiting list, I had my operation at St
Louis Children's Hospital in Missouri, USA on 7th June 2012. The
operation was carried out by Dr T.S. Park. Dr Park is
Neurosurgeon-in-Chief at St. Louis Children’s Hospital, and is one of
the nation’s leading paediatric neurosurgeons.
Post operation
Since my operation I have much more control over my limbs and as
part of the rehabilitation I have made two trips a week to the
specialist Cerebral Palsy Physiotherapy Centre for Selective Dorsal
Rhizotomy in Flitwick, Bedfordshire. I also make two, week long trips
a year to Scotland for an intensive core muscle strengthening programme.
In June 2013 I was awarded the Pride of Peterborough award for
Child of Courage which was presented to me by Sam Womack.
The Future
I'm hoping I will be able to walk unaided eventually and I've
been making some great progress with sitting up and crawling since my
operation, but I will still need Physiotherapy and trips to Scotland
for a long time, all of which is not covered by NHS funding so Mummy
still needs your help.
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