Your share could raise £30
Before you go, did you know that simply by sharing this campaign, you could help it raise £30? It's an effective way to support the cause.
No thanks- Pin it
- SubscribeUnsubscribe
- Embed
Beth Creation hasn't added a story.
Kam, the sweetest, funniest kid I know, arrived into the world in June 2005. He made a dramatic entrance 8 weeks prematurely, weighing in at a teeny tiny 3lb 4oz. Within hours of his arrival he had been whisked away to theatre to "fix" a problem with his heart. The surgery was a success, but it did not "fix" his broken heart. Most, if not all, parents and families of a child with Congenital Heart Defects (CHD), soon come to realise that a broken heart can never truly be "fixed" and this is certainly true for us and Kam. By the spring of 2006, Kam had undergone 4 open heart surgeries and had been diagnosed with Hypoplastic left heart syndrome (HLHS) (http://goo.gl/N0EbD). By Autumn the following year, we also had a diagnosis of Arrhythmogenic right ventricular dysplasia (ARVD) (http://goo.gl/Mbhn). This is considered to be a working diagnosis as other, as yet still undiagnosed, factors are also at play.
Kam, now aged 8, is still with us and is a joy to know. Despite facing major obsticles along the way, he is a cheerful, bubbly, polite and very bright little man. Kam has, to date, spent almost 3 and a half years of his life in hospital. It hasn't been easy for him or the family but he rarely complains.
As I said earlier, it isn't possible to "fix" a broken heart and over the years we've come to understand that Kam will never be cured. Due to the ARVD, his heart is now damaged beyond repair and he'll require a heart and probably lung transplant. Due to the HLHS and the "other" factors, this isn't a simple matter as there is major reconstructive surgery required before a healthy heart will "fit".
Earlier this year, Kam was fortunate enough to travel to California to meet with specialists who belived they could help with the reconstruction process. Although it is possible to do this in the UK, it is thought that it would take many years to complete. Time which we may not have. Whilst in America, countless scans, blood tests and other tests (lung function etc) were carried out. Long story short, the results of these tests were passed to a Heart centre in Boston and it is hoped Kam will travel in 2015 to Boston to undergo surgery to prepare the way for a transplant.
Most of you are probably reasonably familiar with Kam's battles from updates in person or on Facebook and know that this isn't a very "us" thing to do. At least, I hope you know that. It isn't something we have decided to do lightly but over the past month alone it is evident how much Kam is deteriorating and the reality is dawning on us that Boston is our only realistic hope of preparing Kam for transplant. Unfortunatly, medical care in America does not come cheap and whilst we are raising as much as we can towards the surgery ourselves, the additional costs (travel, accomodation, food, transport to and from hospital appointments before we travel and once there etc) are spiralling and it is becoming less and less likely we will have the funds in time.
Hopefully you also know us well enough to know that we never ask for something for nothing, so to anyone donating £5(+), please let us know you have and send us your address so Kam can send you a little beaded thank you.
Thank you so much from the bottom of our hearts <3
Jen (Aunty Jen) xx
Highlights
See all activity1Activity
Delete media item?
Delete this item from the media gallery? It will also be deleted from any related story update.
Set as ?
The campaign video will appear in social media and email.
The campaign cover picture will appear in social media and email.
The will appear at the top of your campaign page and in social media and email.
Reset ?
It will be removed from the top of your campaign and won't be used as default in social media and email. The will remain in the media gallery.
Embed
Share a link
Delete update
Delete this story update?
Any pictures or videos will remain in the campaign's media gallery.
Report campaign
Report submitted
Thank you. We take reports like yours very seriously. Our goal is to keep the community safe.
Please know that we may contact you for more information, but that we won't notify you personally of our decision. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Thank you. We've already received your previous report. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Tell us about the problem. Please fill in both fields below.
Record a video
Upload a video
Nothing grabs attention for your cause like a personal video. Take a minute or two to record one now. Record a short video message of support. Or upload one from your device. You can preview or redo your video before you post it.
Nothing grabs attention for your cause like a personal video. Upload a short video message of support. Upload a short video message of support. Or record one right now.
- Most effective video length: about a minute.
- Maximum length: 5 min.
- You can preview or redo your video before you post it.
Heads up! The existing video will be replaced.
Email your friends
Join our team
Tell people why our cause matters to you. Your personal message will encourage others to help. Easy, effective, optional.
Say it in video
Short personal videos by supporters like you are incredibly powerful. Record one right now and you'll help us raise more money. Easy, optional, effective.
Add a personal goal
Set a personal fundraising goal. You'll encourage more contributions if you do. And rest easy. There's no obligation to achieve your goal or bad consequences if you don't. Easy, optional, effective.
We have a video!
Video thumbnail
We'd love to show you our campaign video. Want to take a look?
, you're already on the team.