Palace-to-palace-cycle-for-cystic-fibrosis
$230 raised
23% of $1k goal
2 contributors
4 Years running
45 mile charity bike ride challenge, from Buckingham Palace to Windsor Castle for Cystic Fibrosis. Cystic fibrosis (CF) is a chronic disease that affects organs such as the liver, lungs, pancreas, and intestines. The hereditary disease ...

45 mile charity bike ride challenge, from Buckingham Palace to Windsor Castle for Cystic Fibrosis.

Cystic fibrosis (CF) is a chronic disease that affects organs such as the liver, lungs, pancreas, and intestines. The hereditary disease eventually leads to disability and multisystem failure.

There is no known cure for cystic fibrosis. However, quality and length of life have been improved over the years through proper nutrition, specialized medical care, and aggressive drug treatments and therapies. Treatments will vary from person to person based on the severity of the disease and the symptoms that are caused by the particular gene mutation. People with CF are almost always taking antibiotics in order to suppress the development of infections

About 1 in 4,000 children in the United States are born with CF and some 30,000 children and adults are living with the disease. The predicted median life expectancy for individuals with cystic fibrosis is 34.4 years

DEAR CF is a charity created by a team of passionate people which Cystic Fibrosis is a part of. Amongst us we have members of all ages who have Cystic Fibrosis and lots of parents and family members.  Our Charity mission statetement is as follows: 

Charity mission statement

The Relief Of Symptoms And The Preservation Of Health Among People With The Genetic Condition Cystic Fibrosis.

  •  To assist in the treatment and care of persons suffering from Cystic Fibrosis with natural remedies, treatments and research.
  • To promote and protect the physical and mental health of persons with Cystic Fibrosis through the provision of financial assistance for alternative remedies and/or treatments, education and practical advice.
  • To advance the education of the Cystic Fibrosis community in natural management of the condition.
  • To relieve symptoms by providing, or assisting in the provision of equipment and services in line with the charities ethos.
  • To advance the education of CF healthcare by provision of lectures, information newsletters, electronic updates and research.

Please visit us at http://www.dearcf.com

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