Help VonCharles Carmack get a Service Dog
$95 raised
2% of $5k goal
5 contributors
4 Years running
VonCharles is an amazing 5 year old little boy; who has several debilitating diagnosis, he struggles from Lennox-Gastaut Syndrome a rare and severe form of epilepsy that starts in childhood and currently has no cure and a poor prognosis. He also has ...
VonCharles is an amazing 5 year old little boy; who has several debilitating diagnosis, he struggles from Lennox-Gastaut Syndrome a rare and severe form of epilepsy that starts in childhood and currently has no cure and a poor prognosis. He also has Autism, ADHD, Developmental Delay and Profound Unilateral Hearing Loss for which he wears a hearing aid.

I want him to have the best life possible despite the diagnosis. A service dog would add an extra set of eyes and ears to watch out for VonCharles when he struggles with seizures, which happen daily.

It would be nice to know that someone else is listening to VonCharles and will be there to help and comfort him.

I am painfully aware of the statistical probability that my son may die before me but I spend a lot of time at home with my family and take advantage of our time together.

“In some regards, it’s been forced upon us to not take life for granted,”

My biggest fear is that VonCharles will have a seizure during the night and that he will die.

I worry that I will wake up in the morning, and he’s gone. So I’m always half awake at night listening for him.

The Service dog would sleep with VonCharles and constantly monitor for anything abnormal in VonCharles behavior, which could signify an upcoming seizure. When VonCharles experiences a seizure, the service dog will bark to let me know VonCharles needs help. Then the service dog is trained to rush back to VonCharles and nudge him onto his side so he dosen’t throw up and aspirate if he’s on his back.

The service dog will also be trained to retrieve VonCharles emergency medication. All I have to say is, “Get meds,” and the dog will race to the designated spot at the front of the house to retrieve a small bag containing the medication.

The service dog will also be trained for autism therapy and hearing impairment.

There are currently medications that help treat seizures, but Lennox-Gastaut syndrome is remarkably resistant to most seizure medications. As VonCharles has become resistant to different options, he has experienced cluster seizures, upwards of 100 seizures a day.

At the moment his combination of medications control his seizures to about a few every day, but doctors are not certain how long it will last before he becomes resistant to the meds again

Although it’s hard, life with a special needs child makes me fight harder to find every possible way to help my son live life to the fullest.

It's not easy getting a seizure-trained dog, They are very pricey because of the rigorous training they go through. that is why I am asking for donations.
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