Team Damain vs Mitochondrial Disease and Epilepsy
$65 Raised
1% of $5k goal
3 contributors
3 Years running

Damian was born at 34 weeks weighing a little over 4 1/2 pounds. He is happy 1 year boy that has been diagnosed with Mitochondrial Disease and Epilepsy.

What is Mitochondrial Disease?

Mitochondrial diseases result from failures of the mitochondria, specialized compartments present in every cell of the body except red blood cells. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell. Cell injury and even cell death follow. If this process is repeated throughout the body, whole systems begin to fail, and the life of the person in whom this is happening is severely compromised. The disease primarily affects children, but adult onset is becoming more and more common.

Diseases of the mitochondria appear to cause the most damage to cells of the brain, heart, liver, skeletal muscles, kidney and the endocrine and respiratory systems.

Depending on which cells are affected, symptoms may include loss of motor control, muscle weakness and pain, gastro-intestinal disorders and swallowing difficulties, poor growth, cardiac disease, liver disease, diabetes, respiratory complications, seizures, visual/hearing problems, lactic acidosis, developmental delays and susceptibility to infection.

The symptoms of mitochondrial myopathies include:

The prognosis for these disorders ranges in severity from progressive weakness to death. Most mitochondrial myopathies occur before the age of 20, and often begin with exercise intolerance or muscle weakness. During physical activity, muscles may become easily fatigued or weak. Muscle cramping is rare, but may occur. Nausea, headache, and breathlessness are also associated with these disorders.

What is the prognosis for mitochondrial disease?

The prognosis for patients with mitochondrial myopathies varies greatly, depending largely on the type of disease and the degree of involvement of various organs. These disorders cause progressive weakness and can lead to death.

His parents have set up a Facebook group in order to provide updates and support Keian and his family through this journey. You can join this, by following this link:

Please help support this wonderful family and their beautiful baby boy if you can. No amount is too small and any amount donated would be greatly appreciated. We thank you so much for your support.

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