Hearts for Adi
$507 raised
34% of $1.5k goal
9 contributors
4 Years running
Adilynn Jo Nelson came into this world, against all odds, on August 16, 2013. A little background on Adi Jo written by her mommy....

On April 15th, Mike and I found out that we would be expecting our first baby girl! During the sonogram, the nurse ...
Adilynn Jo Nelson came into this world, against all odds, on August 16, 2013. A little background on Adi Jo written by her mommy....

On April 15th, Mike and I found out that we would be expecting our first baby girl! During the sonogram, the nurse had a tough time getting a good picture of our little girls heart. She was very wiggly and wouldn't hold still. Our doctor decided that it would be best to visit a well-know High Risk Doctor in Peoria to get better pictures of her heart. He assured us that this is normal and the HR doctor probably wouldn't find anything wrong, but wanted to be safe rather than sorry.

April 26th, we met with our Cardiologist so that they could perform an echo and find out exactly what was wrong with Adilynn. The echo (which is basically just an ultrasound on her heart) lasted for what seemed like an eternity. Two nurses looked at her and then finally called in the Cardiologist to take a look. It seemed as though they were also having a tough time getting the pictures they wanted. Adilynn was not being very cooperative and the longer they looked, the more worried I became. Finally the doctor said that he had all the pictures that he needed and he would meet us in the office next to the room where we were at for the sonogram. The cardiologist told us that there was something wrong with Adilynn's heart. When her heart formed, it didn't form properly and she had a congenital heart disease called Truncus Arteriosus.

Truncus arteriosus (TRUNG-kus ahr-teer-e-O-sus) is a rare heart defect that's present at birth (congenital). If your baby has truncus arteriosus, it means that one large blood vessel leads out of the heart. Normally, there are two separate vessels coming out of the heart--Mayo Clinic Website Except for Adilynn's Truncus was just a bit different. She also had a bad valve at the end of that trunk that was causing the most concern. The doctor was very straight forward and told us that it didn't look good for Adilynn and more than likely we would lose her before she was born. Her heart would eventually go into Heart Failure. All we could do is come back in two weeks and take another look at her and see if her heart has gotten worse. So that pretty much brings us up to speed on what has been going on for the last three weeks. It has been a roller coaster ride of emotions and Mike and I are trying to stay strong for our little girl.

Today (9/6/2013)
Adi Jo is currently 3 weeks old, made it through her heart surgery, and still fighting like we knew that she would! The community as come together to help raise money for all the bills that are accruing while Adi is recovering, so that her mommy and daddy can focus on their precious little miracle baby! Any donation amount is greatly appreciated and will help this amazing family!
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