Thank you everybody. Our campaign is now over.
Caring for Lauren
$835 raised
17 contributors
0 days left
Ended Jan 30, 2014
On May 1st after two months of complicated symptoms and a hospitalization at Rady Childrens, Lauren was diagnosed with MELAS. MELAS stands for mitochondrial encephalopathy, lactic acidosis and stroke like episodes. This diagnosis means Lauren will ...
On May 1st after two months of complicated symptoms and a hospitalization at Rady Childrens, Lauren was diagnosed with MELAS. MELAS stands for mitochondrial encephalopathy, lactic acidosis and stroke like episodes. This diagnosis means Lauren will often be very low on energy and not be able to do many of the things she is use to doing each day. Lauren gets so low on energy it causes severe headaches and vomiting and she is at high risk for repeated strokes. Lauren has had at least two strokes that we are aware of that have affected her balance and vision. Lauren's prognosis is not promising. She will continue to have strokes. There is no way to know when the strokes will happen or how damaging each one will be. The strokes can be debilitating and eventually fatal. Doctors are unable to give us a time frame because there is no way to know how each stroke will affect her when they come. Sadly, because this mitochondrial disease is a genetic mutation, there is no cure and there is currently no available treatment other than a "vitamin cocktail". We have been told to try to live each day as normally as we can and make the most of each day we have with our girl.
Dan and I are so grateful for the love and support we have received and the love shown to Lauren from so many friends young and old. We will continue to need your support through this journey in so many ways.
If you are interested in learning about MELAS or mitocondrial disease, our best reference has been a book titled "Living Well with Mitochondrial Disease", by Cristy Balcells, R.N., M.S.N. This book can be purchased through amazon. Also see the web site for the United Mitochondrial Disease Foundation at info@umdf.org.
So many are asking how they can help. Some days we don't even know how to answer. But we are coming up with good and very helpful ideas that are working for our family. I will start posting information about that soon! The one thing that all of you can do now is enjoy every day you have with your children. Thank you for your prayers, Dawn, Dan, and Lauren Francis
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