Help Lleyton find a cure for his fatal illness
£310 raised
6% of £5k goal
11 contributors
4 Years running
Lleyton Coombes is a 6 year old little boy from Salford, Manchester. Lleyton was diagnosed with a rare and fatal illness when he was 6 months old, called Niemann Pick Type C, sufferers diagnosed this young rarely live past 10 years. Lleyton developed ...
Lleyton Coombes is a 6 year old little boy from Salford, Manchester. Lleyton was diagnosed with a rare and fatal illness when he was 6 months old, called Niemann Pick Type C, sufferers diagnosed this young rarely live past 10 years. Lleyton developed normally until he was around 2 years old, that's when he started to show symptoms of decline, he became unsteady on his feet and he lost the ability to say the few words we had come to love to here, mummy, , daddy, and his favourite footie team City!
Just recently there has been some exciting developments in the US and a new drug that may help sufferers of this dreadful illness, called cyclodextrine has started to undergo phase1 trials. Should these be successful, they will bring the trials to the UK in about 18 months to 2 years, however this will come at a cost. As it stands, just like lots of other rare conditions, the government ignore it and will not fund it.
This is where we need your help!!!
We fundraise for Lleyton to help the family with some of his needs, and also do specific fundraising for the NPDGUK who will be helping towards funding any phase 2 trials in the UK.
We have a Fire Walk for Lleyton Planned on 10th March 2013 at Swinton Park Golf Club in Salford. We currently have 63 participants, ideally we would like 100.
If you can help with either making a donation sponsorship on this site for the walk or if you would like to join us please feel free.
Our email address is Prideinlleyton@hotmail.co.uk
Our website is www.prideinlleyton.co.uk,
Facebook group Pride in Lleyton or if your on twitter it's @prideinlleyton
All you need to secure your place is £10 deposit now and secure a minimum of £50 in sponsors payable on the night, this includes a hot meal for yourself.
Many thanks
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