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Every 1 in 4,000 people are effected by DiGeorge Syndrome. If a person has DiGeorge Syndrome, one copy of Chromosome 22q11.2 is missing a segment that includes an estimated 30 to 40 genes. It is responsible for heart defects, cleft palate, distinctive facial features, hearing loss, and low calcium levels.
Jenna F. graced us with her presence on October 8, 2007. She was said not to live past the life expectancy of six months (6mos.). Since then she has had many procedures to help heal her heart; one of which is a Cardiac Catheterization, which affects her undeveloped heart valve and much more.
Jenna, is a very Gifted little girl. She currently attends Jardine Academy where she surpasses and exceeds her limitations brought upon by her disorder. Even, facing the challenges; such as being non-verbal and slight dependency, Jenna has learned and conquered potty training and self-feeding. Her next move is to start self dressing, tieing her shoes, running, and just having fun learning how to do MORE on her Own!! =)
That is why I need Your HELP! ;-) I know under the right circumstances, Jenna will master every adversity she faces. With the right resources provided i would be able to obtain a safety bed that would accomodate Jenna to sleep safe and sound through the night. She is also in urgent need of orthodic footwear to help correct her walking, and an Ipad which would help enhance and stimulate her brain through learning programs.
Doctor's said she wouldn't make it. But JENNA continues to Thrive and Keep Pushing On! She's a little musical genius who loves the piano. Please help me, Help her, Keep thriving!
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