My partner had a spinal AVM and now needs therapy
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$1,290 Raised
11% of $12k goal
11 contributors
98 Weeks running
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My Partner  Salvador Ramirez was a healthy 30 year old but had an underlying condition which was not meant to hamper his life. It is called a spinal AVM and is similar to a brain anuerism however it is on the spine.  It is a rare condition. ... More ...

Dear Family and Friends

The Issue has been resolved with PayPal and contributions can now be accepted.  If for any reason you have an issue please email me at antony_sheehan@hotmail.com

From the bottom of my heart and Sals family..Thank you xxxxx

My partner Salvador Ramirez was a healthy 30 year old but had an underlying condition which was not meant to hamper his life. It is called a spinal AVM and is similar to a brain anuerism however it is on the spine.  It is a very rare condition.  

Over a period of 8 years and after several episodes in hospital Salvador was gradually losing movement in his right leg, and sensation on his left leg and other parts of the body from the chest down.  In 2012 his neurologist, Professor Knuckey in Perth, Western Australia consulted Professor M. Morgan in Sydney Australia who advised he could perform a procedure to remove the AVM to stops further episodes. 

He advised Salvador would be in hospital for 2 weeks, well the operation was a success to remove the AVM however we spent 3 months with Sal in hospital. In the beginning following surgery Sal was able to move his lower limbs to start with and then that diminished. 

The cost was over $400,000 on that procedure with a lot of help from our private health insurer HBF.  Sal is now in therapy in Perth and it’s called Walk On Perth which has been taken from the Project Walk in America, this program is extremely beneficial to persons with a spinal cord injury as they simply cannot exercise their entire body without significant personalised assistance. 

We are now running so low on funds that I have come to this site so that maybe you can help us keep the program running as it is helping Sal so much.  However the money is now running very low and this therapy comes at a significant cost. At the end of December there will be no more money to continue and all of Sal's hard work will disappear and I honestly can’t think of what to do.  

I keep saying things will get better, and in my mind I keep saying that it will get better, I'm just so scared that Sal will lose heart . 

If anyone can assist us with continuing the therapy anything will put a smile on our faces. A dollar here and a dollar there always makes a diference  

I love this man to death and will constantly figure out how to continue with the therapy...

Antony

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