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Nola, Sanfilippo, & the Fight to Save Her Life
$45,002 raised
100% of $45k goal
269 contributors
0 days left
Ended Apr 20, 2015
Nola suffers from a rare & terminal disorder called Sanfilippo Syndrome A.
But a MIRACLE is on the horizon!
Gene Therapy Clinical Trials, yet these trials still lack necessary funding.
Through your support, you can be part of the MIRACLE!
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Nola, our 1 year old daughter, has Sanfilippo Syndrome A.

Children suffering from Sanfilippo are missing an essential enzyme for normal cellular function. Over time, a toxic material called heparan sulfate builds up in their brain and body leading to severe disability and death before they even reach their teen years. 

There is HOPE! A MIRACLE on the horizon!
Gene therapy clinical trials at Nationwide Children's Hospital (Ohio) scheduled for 2015. BUT these clinical trials are still lacking necessary funds. 

We hope to see Nola have the opportunity to become the woman she was created to be. We are desperately hoping that we will not lose her to this devastating disorder. 

Parent/Patient Advocacy Groups & Foundations around the world are diligently working to make our hope & the hope of so many other parents of children with Sanfilippo Syndrome a reality. We are so grateful for the work they have accomplished so far & want to do whatever we can to fund the medical research and clinical trials that could possibly save the lives of our children. 

Please consider supporting Team Nola & be part of the MIRACLE! 

Your support gets us one step closer to making our hope a reality! 

Thank you! 
Shiloh & Derek Carter 
TeamNola4ACURE@gmail.com
https://www.facebook.com/TeamNolaCarter

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