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Juaquin Robertson Memorial Fund
$1,575 raised
45% of $3.5k goal
64 contributors
4 Years running
Juaquin was a special 9 year old boy that was born with a rare genetic condition called Myotubular Myopathy. He passed away in his home September 17, 2013. His family needs your help for his funeral expenses.
The condition that Juaquin had was so rare ...
Juaquin was a special 9 year old boy that was born with a rare genetic condition called Myotubular Myopathy. He passed away in his home September 17, 2013. His family needs your help for his funeral expenses.
The condition that Juaquin had was so rare that at one time there were 12 males in the entire United States with the disease and both Juaquin and his older brother Kiwan were 2 of the 12. Kiwan passed away 6 years ago at the age of 4. This disease made it so Juaquin could not breathe on his own, he needed a ventilator. He also could not eat, so he had a feeding tube. The disease however did not affect his mental status so he was completely cognizant of what was happening to him. He spent most of his life in a bed, trapped in his body and unable to communicate his wants or needs. The trach and ventilator prevented speech, and contractures in his hands prevented sign language. But through it all, Juaquin often could be seen with a smile while watching Elmo or holding in his hand a little toy car.
The funeral home requires that all funeral expenses be paid in full prior to the start of the funeral service. The services are scheduled for Monday September 23, 2013. The cost of the funeral is 3,500. Due to Juaquin’s condition, he was unable to receive life insurance. The family is unable to pay these funeral expenses on their own, and they need your help.
This family has already been through the loss of one child, and now they have lost their second due to this same disease. Please help them through this by relieving some of the stress of funeral expenses. Thank you.
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