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Good news--now you can! For the price of just 2 beers, you can help Jack and Emma, the beautiful children of my friend Mandi, to have their own Christmas miracle.
Because that’s what Jack, Emma, and Mandi Fyock need right now, a miracle.
Jack just turned 5 on September 11th. He has been diagnosed with Fragile X Syndrome with moderate to severe autism, along with 2 brain cysts, epilepsy, sensory integrated disorder, and suffers from persistent gastrointestinal issues. For the most part he is non-verbal, but is able to say small words or sentences every once in a while. Because of sensory issues, Jack has difficulties with eating and getting proper nutrition. He is also still in diapers because he hates the way a toilet feels.
Emma will turn 2 on January 6th. She has been diagnosed as having moderate autism, generalized pediatric dystonia, has a cyst on her brain, and suspected epilepsy as well. There is no cure for dystonia, so doctors can only treat her symptoms. She is on numerous medications, but as of late, none seem to work. Due to the fact that she is so young and so tiny at 21lbs. (9.5kg), there's not much they can do to help her, as most available medicines are too strong for her to tolerate. Most days Emma is in so much pain that she screams constantly and is unable to walk, her only comfort coming from Mandi, herself a tiny being, who must stand rocking Emma for hours in her arms.
Because Emma is not terminally ill and is able to walk at times, insurance refuses to cover the costs of the hospital bed she desperately needs. Mandi’s husband has left them because he couldn’t handle the stress of their children’s needs, taking their car with him. This has left Mandi and the kids to fend for themselves, hundreds of miles away from her own family and support network in Pennsylvania.
Without a car and any support network to help out with her children’s care needs, Mandi is unable to work. She must constantly find ways to pay the $85 each way that it costs to get to their doctor’s appointments, which is almost an hour away. There is black mold growing on the walls of their apartment, but they cannot afford to have it removed or move themselves.
Between the worries Mandi has over needing to care for her children round-the-clock, constantly having to fight her insurance company, living in a home that is making everyone ill and always having to worry about how she’s going to make ends meet, she often cries herself to sleep, not knowing how much longer they can survive this way.
Thankfully, most of us who have children in our lives will never have any idea of the kind of constant stress, worry, and fear that Mandi lives through every day over Emma and Jack.
They really need a miracle right now. Just a little something to help them get back on their feet, to help Mandi to buy Emma the bed she so desperately needs, maybe even a used car so that they can get back and forth to their doctor appointments.
Please help make this happen and buy them some beer!
Rather, consider donating whatever the price of 2 beers is wherever you live to their Buy These Poor Fyocks Some Beer fund. Because surely, if I were to tell you this story in a pub somewhere, you’d consider buying this poor family a beer or two to cheer them up, right? OK, maybe money is tight for you too, so you’d at least buy them a glass of milk. Or you’re a fancy pants and you’d buy them a whole bottle of vodka. Whatever the drinks you’d buy, please donate that amount to their fund.
At the end of the day, the cost of a few drinks means nothing to most of us. But if each of us just donated that small amount of money to Emma, Jack, and Mandi, it would take them out of a place of living in constant fear to changing their world for the better.
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