Al Ditheridge - Fund Raising For PXE International
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£2,308 Raised
115% of £2k goal
51 contributors
0 days left
Ended Apr 2, 2015
Pseudoxanthoma elasticum, PXE, is an inherited disorder that causes select elastic tissue in the body to become mineralised, that is, calcium and other minerals are deposited in the tissue. This can result in changes in the skin, eyes, ... More ...

Pseudoxanthoma elasticum, PXE, is an inherited disorder that causes select elastic tissue in the body to become mineralised, that is, calcium and other minerals are deposited in the tissue. This can result in changes in the skin, eyes, cardiovascular system and gastrointestinal system. PXE was recognised over a hundred years ago. It affects approximately 1/25,000 people making it a rare genetic disorder.

Our eldest son was diagnosed with PXE in the summer of 2013 and since then we've been wondering what we can do to help find ways of combatting the various illnesses related to the disease. So, in addition to the dietary and healthy lifestyle that we have to impose on our son, I thought it would only be the right thing to push myself, (and maybe some others), to enter into various physical challenges to help raise awareness and money to help international research into PXE.

Over the next twelve months I'll be entering into various events, races and challenges, hopefully being supported and sponsored, by family, friends, organisations and anyone else that is able to offer any little bit of support to help fund the extremely valuable research that is being commissioned around the world by PXE International.

Please do contact me if you would like more information about PXE but please feel free to visit the PXE International website: www.pxe.org as they are the experts. Even better, you could donate to my fundraising page, that would be brilliant.

Thanks for taking the time to visit.

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