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Norm Desjardins hasn't added a story.
Cynthia Verrill is my son Tyler's (age 9) school mate at Effingham (NH) Elemenetary School in Effingham NH,
Cynthia was born with Tuberous sclerosis -- also called tuberous sclerosis complex. TSC is a rare, multi-system genetic disease that causes benign tumors to grow in the brain and on other vital organs such as the kidneys, heart, eyes, lungs and skin.
It usually affects the central nervous system and results in a combination of symptoms, including seizures, developmental delay, behavioral problems, skin abnormalities and kidney disease.
There is no cure for TSC, although treatment is available for a number of the symptoms.
Tyler and many other skiers have teamed up with King Pine Ski Area, Pepsi, and a host of others for "Cynthia's Challenge - a 24 hour Ski-A-Thon on March 21-22.
Ty's goal is to raise $1,000.00 to help defray the cost of a specially trained service dog that will forwarn seizures. The cost to train this dog will be $35,000.00. But together WE CAN DO IT! If you have a dollar you can spare, please join us in supporting Ty and his team for CYNTHIA's CHALLENGE or START YOUR OWN FIVE MEMBER TEAM!
Read more: http://www.wmur.com/escape-outside/king-pine-to-hold-skiathon-to-help-pay-for-effingham-girls-service-dog/24713490#ixzz2v2aZZDlu
feel free to contact me at normandesjardins@hotmail.com if you have any questions about Cynthia's Challenge..............
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