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Verona Ault-Bedtka hasn't added a story.
Abygail was born July 5th 2013. We knew from birth that there were problems. She was a c-section, and when she was born she didn't cry at all or breathe on her own. Her daddy and I were very scared. After about 2 hours I finally got to meet her and it was a joyous sight. Her 2 sisters were able to meet her and lots of friends and family. She was in our room for one day until she couldn't keep her temp up, she was jaundice, she wouldn't eat, she was making these abnormal movements. So she was admitted to the niccu for tests. They did a ton of blood work an EEG an mri a head ultrasound and everything was normal. They started her on an ng tube and I began pumping for her. She still had a very hard time eating so most her food was given by ng. The drs at our home hospital couldn't find anything so they had her transported to university Iowa hospital. Where we stayed for 10 days. I was away from my babies and we kept going around and around. We got to the point where we just wanted her home so we pushed and pushed. We were finally discharged with no answers and get being bottle fed but chocking while she ate. When we finally came home it was dr appt after dr appt. We continued to receive no answers. So we self refereed ourselves to Rochester Minnesota. We've had the greatest care here. She has the greatest drs. She has being diagnosed with underlying causes,infantile spasms. Hypotonia developmental delay and failure to thrive. We travel to Rochester every 2 weeks. She's is currently 6 months and she acts like a newborn. It's very hard to go through what we're going through but with wonderful support and our wonderful God. I want to thank you for your prayers and any don't action you could help our family with. You can follow her in Facebook here Prayers for Aby. God bless.
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