Rey and Mei Against Battens Disease
$1,045 raised
21% of $5k goal
15 contributors
5 Years running
Its every parent's worst nightmare.
Rey and Mei Alsemgeest have a terrible genetic disorder called Battens Disease. In simplest terms, it is a brain killer, a child killer. There is no treatment or cure. They desperately need your help to pay for ...
Its every parent's worst nightmare.
Rey and Mei Alsemgeest have a terrible genetic disorder called Battens Disease. In simplest terms, it is a brain killer, a child killer. There is no treatment or cure. They desperately need your help to pay for medicines, dietary supplements and feeding equipment as well as mobility equipment. We have spent $42,000 in the last year and a half on equipping our home and vehicle to make our children's short, tragic lives as comfortable as possible. Please help. Even a little goes a long way. Please search "Rey and Mei against Batten Disease" for more details
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