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I am Kay, Debby Woods cousin. I wanted a way for our family and friends to come together and support the Wood family and in turn raise awareness for the condition Scleroderma. Kevin was diagnosed with a rare form of Scleroderma just over a year ago.
Scleroderma is a connective tissue disease that affects the skin and other major internal organs.
It is an autoimmune condition, involving the overproduction of collagen and blood vessel damage. Excess collagen is laid down in these organs, which in turn results in scarring and reduced normal function of the affected organs.
Scleroderma can be life-threatening as the skin, joints, tendons, and parts of internal organs can all be affected.
Autoimmune conditions occur when the body’s tissues are attacked by its own immune system.
Around 12,000 people in the UK have been diagnosed with scleroderma, with women affected four times as often as men. However, the complex nature of the condition can often lead to misdiagnosis.
The onset of scleroderma is most frequent between the ages of 25 to 55 but it may affect any age group, from children to the older generations.
The exact cause or causes are still unknown. Factors other than gender, such as race and ethnic background, may influence the risk of developing scleroderma, as well as the age of onset, and the pattern or severity of internal organ involvement.
Unfortunately Kevin is experiencing symptoms from both localised scleroderma and systemic sclerosis.
More details of the condition can be found on www.sclerodermauk.org and http://www.nhs.uk/Conditions/scleroderma
The Wood family are a proud and fun-loving family, who will do anything for anyone. Kevin has a bucket list of places he wants to visit as a family and this is our way of supporting them in making cherised memories together. We all wish we could do more for them but we hope they will be able to use this money to enjoy their time together however they wish to do so.
We hope to use this page as a platform for future fundraising in aid of The Scleroderma Society. Helping them in their research and to help support other families who may need it.
Please help us to help them make some lasting memories.
Any donation recieved will be greatly appreciated.
Kay and family xx
Unfortunately since starting this campaign Kevin has since lost his battle to scleroderma, and his family remain devastated.
Funds raised prior to kevins passing were used to buy a mobility scooter, so that on his good days he could get out of the house for some fresh air, sadly Kevin only got to use this once.
All funds donated from now will be used to raise awareness of this terrible life threatening disease. We will be helping the very worthwhile chairty "Scleroderma Society", by donating the money raised.
ABOUT SCLERODERMA SOCIETY:
"We are the Scleroderma Society, a leading UK charity dedicated to supporting diagnosed individuals and their families whilst actively raising awareness, challenging decision-makers and funding research. Scleroderma can be a devastating disease not only to the individual diagnosed but also to family and friends. Scleroderma is a rare autoimmune condition which involves the overproduction of collagen. This is deposited in the body’s tissues causing hardening and scarring of the skin and internal organs. ‘Normal’ life can become struggle and the simplest of tasks can become impossible as the condition reduces normal function of affected areas. Scleroderma has no cure and can lead to physical disability or even death. We make living with scleroderma manageable by offering much needed support to diagnosed individuals but also to their families, carers and friends. Our services include a free support helpline, a network of local support contacts across the UK, an online discussion forum, an annual conference, an informative quarterly newsletter and an extensive range of literature on scleroderma."
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