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Barbara Prud'homme hasn't added a story.
My wonderful, beautiful niece has Pulmonary Hypertension (PH). This life-threatening disease affects the arteries of her lungs, and currently there is no cure. She gets dizzy, faint, breathless, fatigued, can experience chest pain or her heart can beat super fast - among many other symptoms. PH has been a scary and stressful disease for her and her whole family. It is also a rare disease, meaning treatment options are both limited and expensive.
Currently, her symptoms are being managed with the help of a device that pumps medication 24 hours a day, 7 days a week, that opens up the arteries in her lungs to more effectively pump oxygen to her heart - so that her heart doesn't have to work quite so hard. This has really limited her ability to do the most normal things like go swimming or showering with ease. She also runs the risk of serious infections and the medication can cause side effects.
It has been so hard to watch how PH has affected Mia, her mom Chris, her dad Mike and her little sister Allie. Beyond the immense emotional toll day to day life with PH takes and other social burdens, Mike and Chris have had to do things like reduce their working hours, which has had a significant effect to their financial situation. With or without insurance, PH treatments can be incredibly costly (how is that fair????)
I am running the Chicago Marathon On October 7, 2018, for Mia, and I am asking anyone who has been touched by this story to consider "sponsoring" me. All donations collected will go directly to Mia's family to help lift even a little bit of the financial burden that this disease has placed on them.
If you want to learn more about PH, please visit PHA Canada. If you'd like to learn more about life with a daughter who has PH, please go over to Chris' blog - it gives a raw, real account of the day to day challenges she and her family have been facing.
Thank you to anyone and everyone who decides to sponsor me - it means more than you know. Thank you also to anyone who takes a moment to learn a little more about PH.
PS: I'd also be thankful to anyone who wears periwinkle/purple on October 7th and posts a pic to help me get through my run and to show support for Mia and her family!!
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