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Stew is 33, has been married for just over a year to Claire and they have a beautiful 7 month old baby boy called Owen.
Stew also has motor neurone disease and is slowly but surely losing the use of his muscles. The consultant told him recently that the average prognosis for someone at his stage of MND is up to 12 months.
Stew is an amazing guy. He's fun, clever, witty, and has always been very fit and active. He's also a fantastic dad, but... in the last two months he has lost the ability to hold his son in his arms as his muscles are too weak.
There's a new drug that's being tested over here now, which can delay the progress of the disease (there is no cure) and may help to repair some of the damage which has already been done.
Stew is sixth in line on the reserve list for the free trial, but literally hasn't got the time left to wait.
The drug is already available in America, Canada and New Zealand and apparently a rugby player who had lost the use of his hands was given 3 injections a day and was subsequently able to do up his buttons.
As Stew's family, we want to do everything we possibly can to raise money for this drug, to give him a chance to watch his son grow for a few more months and hopefully even cradle him in his arms.
This drug costs £1,350 per week.
However, if you buy a year's supply it costs £30,000 instead of over £70,000.
We want to raise as much money as we can to give Stew the best quality of life he can have for the time that he has left.
On 19th October 2014 we took the plunge into an ice cold swimming pool (which we topped up with extra ice) in order to raise money.
We created a video of this icy challenge (http://youtu.be/W4eWmspTx7Q) to prove to those who sponsor us how worthwhile their donation is, and to raise further awareness of this terrible disease.
Please dig deep for Stew – we can't thank you enough.
We have a dedicated bank account set up if people want to donate directly (please contact me for the details) otherwise you can donate via PayPal or click on PayPal but then choose Pay as a Guest (to use debit or credit card).
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