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Joy-Lynn Suttle hasn't added a story.
Our daughter Hazel was diagnosed with Prader-Willi Syndrome when she was 2 months old. We have been advised by every specialist we can find that she should have started on growth hormone therapy treatment by the time she was 12 months old. She is now 15 months old, and still no treatment. We cannot find anyone in Canada who can treat her in a timely manner. Our best hope is to travel to a clinic that specializes in PWS in Florida. Because we are going out of country, none of our costs will be covered. It will all be out of pocket.
Children with Hazel's condition suffer from low muscle tone, which means that without treatment they are very slow to learn to walk. This also impacts their intellectual ability. Since they cannot explore their environment in the same way as other children they will fall behind their peers, unless they receive help. Please help us to take Hazel to Florida to see a specialist so that we can get her treatment started right away and give her the best chance she has at reaching her full potential.
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